I wondered if other forum users have similar experiences with getting a diagnosis, and dealing with both physical and mental health professionals.
In short, my Mum has suffered from spells of depression and anxiety over the last 5+ years, which although at first would mean good and bad spells is now pretty much a constant presence.
After a couple of years seeing the GP, she eventually saw a neurologist. After a DAT scan he said that she had some Parkinsonisms but not Parkinsons Disease. We experimented with sinemet to know effect. Mum has been taking olanzapine for a few years and we were told that this would not effect her Parkinsonism symptoms or how sinemet works.
I was sceptical of this after reading about reports of olanzapine excacerbating Parkinsons symptoms.
After a long time we saw another neurologist privately, who diagnosed Mum with drug induced Parkinsons as a result of the Olanazapine.
We tried to come of the Olanzapine but this was unsuccesful for her mental health.
We saw the same private neurologist again who now says mum has a rare form of Parkinsons which displays in anxiety for many years before being detected. He says nothing can be done before she comes off olanzapine. Understandably we are hesitant to do this after the detrimental effect last time.
Mum has been under the care of various psychiatrists over the last few years, who are loathed to take her off olanzapine.
The biggest issue we face is the lack of communication between the neurologist, parkinsons nurse and psychiatrist. Letters sent are not read by the other party and we are left in the middle to try and communicate the information, whilst each side writes off what the other says- to the extent that they belittle there credentials and dismiss what each advises for Mums treatment. We are left to try and work a way through this somehow, without Mum ever really receiving an actual diagnosis that is consistent.
Any advice on how to progress this - without locking the psychiatrist and neurologist in a room together so they are forced to communicate! - would be very helpful.
Thanks in advance.