I have tried the rope ladder and satin sheets also plastic bags. All in all mechanical aids do not give universal solution.
Any one have similar issues? Any ideas would be really welcome.
Thanks for reading. :)
I advise you to get a grab rail it helps getting into and out of bed .
Have you been in touch with social services for an assessment . That's who gave us the grab rail . They are long term loan .. Worth a try otherwise you end up spending money on some things that don't work for you . Speaking from experience lol....
Can you explain / describe a bed with a grab rail.
A bed grab rail is a metal rail which is attached to a board . This slide between the mattress and base , it is held tightly with straps .
My husband cannot raise hinself of the pillow or turn over . This means I am also awake on and off . I sleep with one eye opened .
It was sods law when the OT visited he had a rare exceptionally good day .
He also gets breathing problems I believe from the Parkinsons he sleeps with his mouth dropped open . He also has Atrial Fibrillation . This only came about at the same time as Parkinsons was diagnosed .
I search for anything that will help him / us , after all the consultants doctors OTs dont live with us do they .
I know they can't work miracles But I keep trying lol
I can also sometimes pull myself up by hanging my right foot over the edge of the bed (that's the right-hand edge as I lie on my back staring at the ceiling) and managing to "hook" my heel into the side edge of the mattress. Then pull!
Many thanks to all of you who have posted comments about this. I was going to try to mention each individual and their comments separately. But I discovered how difficult and time-consuming this would be. All I can do is say a sincere thank you to you all.
Having studied the comments, I think that the solution I should pursue is to have a grab rail on the bed. The complication is that I have an electric bed and so modifications and additions to the bed have to be carefully thought out. So I think my first move is to contact the bed manufacturer and ask them if it is possible, how much, when, etc. If as I expect I am told that is not possible to modify my bed, but that they have a superduper new bed on sale which is electric, has grab rails, sings, dances and only costs umpteen thousand pounds AND they will give me 50 pence for my old bed, then I will be tempted to DIY it. I'm no longer fit enough to do the work myself, so by DIY I really mean try to get a friend or relative to do it!!
Of course it is easy to have these brilliant ideas and intentions when you're in a period when you don't feel too bad. But if you are having bad PD symptoms, every little task assumes monumental proportions.
It will take ages I know, but I will try to report back on progress.
I have seen so many occasions where things are left to the very last before aids are given and I swore this wouldnt happen to us .
We have lived in the same house for 46 years and hope to stay if weget the help and aids we need .
I am in the process of having our downstairs cloakroom door reversed to give more room and grab rails installed .
Will look forward to hearin if the bed grab rail helps Doylipops
thanks to all who have responded. The answer is....... (you knew all along)!!
It would take ages to go through all the ups and downs, but in the end that was the answer.
Good luck Ali, Johnnie and everyone. Thanks again.
Hi to everyone,
On the subject of getting into bed.unfortunatly my husband has this problem also. We have an electric bed which raises front and back , also we have silk sheets, but still it does not solve the problem as he feels so weak , he does not have the strength to lift his legs from from the sitting to lowering position. The other problem is he does have to urinate a few times during the night which makes the problem worse. He does not want to wake me as I also have Parkinson's and have my own problems. At the moment I am coping with helping him lift his legs but not sure for how long. When we eventually do get him into bed he then cannot move.
I cannot see how a grab rail can help as he cannot lift his legs through weakness, also he finds it impossible to cover himself with the duvet. During the night he spends time in the chair because of this problem. We are waiting for social services as we have wasted money on trying things, but as they told us there is a very long waiting list, which means we have to carry on with.this horrible task.
Has anyone ever tried an electric leg lift, or can anyone recommend anything else
best Wishes Juliet A