Your replies are all most helpful and encouraging. Some additional information, I first went on ropinerol about ten years ago when I was diagnosed with young onset Parkinsons, and to deal with shaking the dose rose rapidly to 22mg, before I started on Levadopa.
Yes, it is most encouraging to have a clearer head. I value that a great deal. I am going to tough it out on the neurologists timeline. It has got a little better than two days ago.
On natural levidopa I am a moderate sceptic -- I imagine Socrates' being given his hemlock and joking "Oh, a natural poison, and organically grown (of course in ancient it would all h ave been organic) -- well that's aright then ... and downing the lot..The hemlock was natural but S "died" just the same. .the point being that if the active chemical is the same it seems to me it does not matter how you take it. But of course is it the same active chemical?
My alternative way forward is acupuncture and Chen style Tai Ji - why Chen style? Because as well as having slow, very slow, graceful, movements, it has moments of explosive Fa Jing - punches, kicks, stamps, etc. - it is something I enjoy and it lowers my anxiety. Of course, when shaking badly I cannot do it. I do not know how much it works -- folk at Harvard medical school have a book out saying it does which I hve not read -- But do we not touch and are part of eternity when we do something well and have the joy of it?
I am very much being supported by my doctor and neurologist....and also my acupuncturist. And very glad to be reducing the repetitive compulsive behaviour - up all night reworking pictures and poems, without eating, and the results worse at dawn than at midnight!.
My larger anxiety is -- what will replace the ropinerol? Eye of Newt? Toe of Frog?
As you see from the dosage above the amount of levadopa drugs I am taking is large -- though is it large for a person in their mid fifties active taking care of a two year old and writing etc.? -- but that is a complex question and I think I should open another thread. I am not sure... you have given me such good feedback on this one? Any thoughts?