Giving up work to care for my mum. How will I survive financially?

Hello everyone,

I am a carer for my mum who is 60 and had PD for around 10 years. So put it bluntly her progression is fast, and symptoms are awful. She requires 24 hour care, and most days can barely lift a glass of water to her mouth and more.

I’ve been able to manage this year and have been working from home due to covid. So can take regular breaks from the laptop to help her.

With going back to work in December imminent - I am STRONGLY considering, and have pretty much decided to leave work at the end of December to care for my mum.

I was wondering if anyone has any experiance with what benefits I’d be claiming and what my ‘carers’ wage might be? We have a large mortage to pay, so need to get this all figured out.

Current situation:

  • In process of applying for early retirement for mum. Been off work for over a year, so sick pay has now been removed.
  • I earn around £1050 a month with my current job.
  • Only mum and I in the house so no additional incomes.

Any advice pleeeease :slight_smile:

There’s lots of info out there. The link below is for information on the Parkinson’s UK site and you can ring the help desk too, it may help to speak to someone

I am also including a screenshot with some other ways of getting info. I would highlight the site as they have a benefits calculator and also carers uk for obvious reasons. Citizens advice should also be able to help. Hope this sets you off in the right direction. Good luck and don’t forget to look after yourself whilst looking after your mum. You matter too and you must take care and stay well so that you can care for your mum as you wish.


PS forgot to say make sure your mum is getting all she is entitled to whilst you’re at it. Its a complex area so be prepared to do a lot of reading and form filling.
Good luck

Hi RosieF,

I see Tot has supplied some excellent support links and advice to help you find financial assistance as a Parkinson’s carer. (Thanks, Tot!) In addition to those resources you can search for local Parkinson’s support groups that may be able to help. You can find a post code search bar here: And as always don’t hesitate to contact us at 0808 800 0303 or [email protected] for free and confidential assistance.

Best wishes,
Moderation Team

Hi I have just seen this, my husband has an attendance allowance and a blue badge but we had the help of a lovely lady who is an expert at filling in the forms. We are not stupid, we both had good jobs, I was an accountant, but I am sure without the help we got we would not have filled in the form in the right way as it is no good just putting in the actual detail, you have to put worst case (what it is like on the worst day not the best) and expand on the detail.