Maybe it’s lots of other things that have happened all at once adding to the lack of response from the hospital. I don’t know but I’m sat here at 03:55 on a Saturday morning thinking of stopping my Madopar ( I know not to stop suddenly and I have to reduce slowly, so have emailed GP for a plan) and let nature take its course
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Hi @Johanmb we’re really sorry you’re feeling like this. It sounds incredibly tough, You’re not alone, and you deserve to talk this through with someone who can help. The Samaritans are there on 116 123.
Our helpline is also here for anyone affected by Parkinson’s: 0808 800 0303, which is open until 1pm today. We hope your GP gets back to you soon and you agree a plan for your medication. Sending you all our best thoughts 
The Parkinson’s UK Moderation Team
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As somebody who also has Parkinson’s your post struck a chord and I want to reply but I’m not sure how.
You say you know not to stop medication suddenly which is reassuring but beyond this I am unsure.
I hope mostly that you get listened to, really listened to. My diagnosis left me feeling totally out of control, not helped by the fact that everybody wanted to tell me everything and I struggled to get listened to and ask the questions I wanted to ask. None of this was helped by the threat of redundancy and menopause. Life doesn’t stop just because of the diagnosis and it still keeps throwing curveballs at you as I suspect you know.
I decided to take medication and 14 years I still think it was the right decision for me but I like to understand what I’m taking and why and I like to take the least amount possible. I am also incredibly lucky to have a great nurse who listens when I say something isn’t working or something doesn’t suit me and works with me to sort it out.
Unfortunately I hear people saying that they get left on medication that makes them feel bad and they don’t feel that they are being listened to and this is so wrong 
.
I was very angry for the first couple of years after diagnosis but time and making some good friends with Parkinson’s helped me to find a way to see it as a very unwelcome guest that I can’t get rid of so I have to rub along with it as best as I can.
But this is my experience and not yours and yours may be completely different, however whatever your reasoning and whatever your feelings you should be listened to properly and your thoughts considered carefully and I hope this happens.
Take care
Jx
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Hello, sorry to hear things aren’t good for you. I think stopping taking Madapor is something that many Parkinsons sufferers consider and try.
My husband who has Parkinson’s did exactly this in the earlier stages of his diagnosis. He did stop his Madapor and very quickly realised what a difference the Madapor was making for him. Adjustments were made in frequency and doseage and he returned to taking Madapor.
14 years on still with the regime.
Everyone’s Parkinson’s journey is different; I hope you find your path through.