I am 69 & have Atypical Parkinson’s, confirmed by a DATscan of my brain. As far as symptoms go I am very fortunate. If I am sitting or lying down I feel very well & there are no signs that I have Parkinson’s. Last week I had one of my best days. I went for a short walk & felt I could have run.
I had to give up golf, made possible by riding a golf buggy. So I took up indoor bowls
about 6 weeks ago. I am quite good & play 4-6 days a week for 2 hours. Most of the other bowlers are in their 70’s, 80’s or older. I play in a group of 8, so 2 hours =
120 minutes / 8 players = 15 minutes activity bowling a ball around 40 yards. Take off 20 minutes for coffee half way through … clearly this isn’t energetic. Aged 69 I am the group’s youth policy.
I’d only been playing for 10 minutes on Wednesday. My legs became rigid & stiff & standing on the bowling mat I started to shake & couldn’t move my feet. My left leg felt numb from the groin down.
So I had to stop & sat down for a bit. I felt complete exhaustion & my body felt weird.
I didn’t feel dizzy. Can’t describe the feeling. I sat down & the other wrinklies were concerned. So I sat for a while & when the others were distracted I made my way to my car with a lot of difficulty. I drove home. Then went online searching 111 …
I answered the questions & it said ring for an ambulance, which I did. I told them I did not want to go to hospital but they wanted to send me an ambulance to assess me. So the ambulance arrived & we had a chat. I still did not want to go to hospital but if two pretty ladies ask you to get into a vehicle with them what can you do?
So off I went. Straight into A&E & lots of tests. All were fine, but I still could not walk & was overbalancing when I stood. So I was kept in overnight & discharged myself the next evening as nothing was going to happen was it. They said what I had
was a Parkinson’s issue. There was a Neurologist & he was spoken to but he didn’t see me.
Today is the day after & 11 hours sleep last night. Still feel pretty bad today, but better than I did yesterday. I had to cancel bowls for the next 3 days.
I am on no Parkinson’s medication. Just Amitriptyline & felodipine for blood pressure.
They have changed my BP pill.
Anyone experienced anything like the above?