Gripping hard and not releasing


#1

My husband was diagnosed with Parkinson's 16 years ago. Dementia was diagnosed in 2009.  He is unable to walk or stand and we have carers at 4 hour intervals to change him as he is now doubly incontinent. His speech is inaudible despite many speech therapy sessions in the past. His cognitive problems prevent him using techniques learned earlier despite reminders to take a deep breath, focus on words he wants to say etc etc. there is very little real communication between us and he often fails to answer questions or chose from alternatives which I realise is due to his mental health issues.

He often grips hold of parts of the equipment being used and is unable to release his grip. He also holds on very tight to carers' hands or wrists and this can be quite painful. Any advice on dealing with this would be helpful. Does anyone else have this problem? 

I have quite a good care package but that in itself is intrusive although without it I would be unable to care for him. Is anyone else in my situation? I am 68 and my husband is 70.

I do try to take my husband out in the wheelchair but he finds the activities which we used to do together eg singing, Group Meetings, meeting up with friends very difficult. We invite friends for coffee or tea and cake and I try to get out and develop my own interests when I can. 

We no longer have a Parkinson's Nurse in our area. A regular visit from her was so useful and she was a great source of information. Please can we have a replacement PD Nurse! 


#2

Hi GrannyD,

It sounds like you have a lot going on.

Could you please email us with where you live so we can look into this for you?

With best wishes,
Alethea
Digital Team


#3

Have emailed you as requested Alethea. Many thanks.

 

 


#4

Hi GrannyD,

Thank you, I got your email.

Best wishes,
Alethea
Digital Team


#5

Alethea

Which part of Granny Ds story are you looking into?

 


#6

Hi Leyther,

GrannyD asked about a Parkinson's nurse in her area, which I have contacted her about.

Best wishes,
Alethea


#7

Granny D the parkinsons nurses on this website are very good i have spoken with them myself and they can maybe hep you out xx

 


#8

The problem of gripping hands, raised by GrannyG, is exactly the same as I have with my husband. When he is being helped out of a chair he will grip the handles and not let go. Also he grips my hands or wrists so that they bruise. What is the best approach to help them let go?