Hello, minxish --
Your posts always touch me. Your situation is indeed severe and good cause for mourning all you have lost. At the same time, I sense your hopefulness underneath. You believe that God will not give you more than you can bear and that there will be a better time somewhere ahead. It's a bit like having an elephant standing in front of you, though, while everyone encourages you to "look ahead"! You just can't see beyond the pain of the moment.
I have nothing to offer other than my sympathy and the sincere wish that you will find a way toward calmness and peace of mind. Best regards,
I'm even hoping your elephant will trot off to the elephant graveyard some day!
Parkinsons is not terminal, you die with it, not FROM it, despite what you read in the press about someone who has died from it! It's nonsense.
OH was diagnosed 16 years ago, aged 47, and still not bed bound, not wheelchair bound, has good and bad days. Good day, walks to town and does jobs around the house, bad days, immobile at various times during the day when meds wear off or they have been taken late.
A recent setback with a dislocated shoulder, but, after having the reablement team of carers in for the last 8 weeks, pretty much back to where they were before the shoulder problem. Hopefully a week today we are off on a cruise.
It's a case of getting the meds right, and on time. OH takes meds every two and a half hours, yes it's a pain, especially when out an about, but worth it to be as OK as you can.
Benji is right. If it is Parkinson's disease that you have, finding the right combination of medications (which may take a long time) will work wonders. When I first began medication, my symptoms disappeared completely! Of course, they came back over the years, but by taking more medications and a heavier dose of the one I started with, I still keep the symptoms under control.
I understand the frustration and worry of not knowing, though. Your mind leaps to the wildest and worst possibilities. You can only try to stay calm until you get a real diagnosis.
Best wishes, J