Hello everyone. How did I end up here? Well...
I've been a Type1 diabetic for 21 years, had ulcerative colitis (now quiescent ) for 20years, asthma for 15 years, well controlled, chronic pancreatitis (auto immune) for three years, and a motor neuropathy for three years.
That last one, the motor neuropathy caused a significant reduction in leg power, and caused some discussion as to the cause. The end result of this was a stairlift, adapted bathroom, and lower rate PIP mobility.
Last year, I was rising from a sitting position, when my legs started trembling and sat me down again. I also noticed my walking stick wobbling as I held it. It was when I noticed a textbook pill-rolling tremor in my right hand when I was sitting in the stairlift that I thought -this ain't the neuropathy worsening.
Well, a visit to the Neourogy professor last week confirmed my suspicions of Parkinson's, but he cheerfully went on to say it could be Parkinson's Plus, the deluxe version it would seem. Anyway, he didn't want to start any treatment until a scan was done, and has referred me to the Movement disorder specialist. I think he was trying to tie in the neuropathy with the current symptoms, but I think they are entirely different. EMG studies show that the neuropathy is unchanged. So, another autoimmune disease chalked up. One of these days I might get something that will kill me
So anyway, an explanation of the username. We live on the beautiful Isle of Mull off the west coast of Scotland. My neurology team are in Glasgow, so that conversation with the professor was, including ferries, four hours travel. Each way. Worth it though, a lovely sunny day and some fabulous scenery.
And Me? I'm 64 and retired. I used to be a doctor, but came on this forum to learn stuff, and chat with fellow stiff legged and shaky folk. Just cos I used to be a doctor doesn't mean I know anything about Parkinson's, as I'm sure a few of you have found.
Ill let you all know when I've got the definitive diagnosis, or at least as definitive as it gets before post mortem. Hey ho, a new adventure