This is a very long post but I would be most grateful for any advice.
I’m Sam and I’m 38. My dad was a very young 70 year old and has had PD for approximately 14 years and up until now, he’s managed it really quite well considering. We live together, he, my brother and I and my 10 month old son. I have been his carer for years but I left work 4 1/2 years ago to care for him full time.
In January, Dad slipped and broke his hip. He had an emergency hip replacement the following morning and hasn’t quite been the same since.
Hallucinations started as soon as he woke up after surgery and we just thought it was the anaesthetic and trauma etc, but as the days went on, the hallucinations and delusions just got worse and worse and he became very aggressive towards everyone, the hospital staff couldn’t wait to get rid of him. It was so unlike my Dad because he’s usually such a gentleman.
24hrs after being home, he snapped out of it, but in less than a week, it all started again, not knowing we were in our house, where we’ve lived for 35 years, he kept trying to get out. He was seeing people all over the house, men, women, children, constantly thinking I’m lying to him, seeing my dead mother and talking to me as he was thinking I was my mother, wrecking his bedroom to get the spiders out, up all night shouting the house down, all this with a little baby was really hard, and then just like that, he’d wake up 1 morning and he’d be ok again! This has repeated over and over from January right up until 2 weeks ago, he’d been hallucinating for 8 days and nights and he became absolutely petrified in his own house and no amount of help and reassurance from me did anything for him, so that’s when I asked him did he want to go to hospital and he agreed.
When he broke his hip, he also banged his head but the hospital I took him to then did not scan his head because he didn’t lose consciousness. The hospital I took him to this time said they should have scanned him, so for that reason only, they kept him in to do a scan.
He was only meant to have 1 nights stay so he could have the scan and then come home but while in hospital, my dad’s mental state deteriorated rapidly, the delusions and hallucinations were worse than ever! The doctors did not want to let him go home and he got kept in and he has become really really violent! They put a DOLS on him and he became even worse. He is attacking the staff on a daily and nightly basis and he’s really hurt some of them too. He was trying to stab them all the other evening and when security came (again) he threw the knife at another patient facing him on the ward. He is absolutely out of control!!! He even hit me too on Wednesday 5 times and went to again today. My dad would never harm a hair on my head and he’d kill anyone who tried to. The way he’s treating the hospital staff is just outright disgusting and he’s going to be so ashamed of himself when he’s better, if he gets better??? The only way to calm him down is by sedation and sometimes he’s so sedated, he looks like he’s dying. He’s now refusing to eat and drink, he’s lost so much weight over the past 2 weeks, it’s awful.
I discussed with doctors that even though the staff on the ward are amazing, it was just a general medical ward, and the staff aren’t trained to care for a person presenting these type of mental health issues and that he needed to be moved asap. The doctor agreed 100%.
Well today, he has been sectioned under section 2. We are just now waiting for a bed in a local mental health hospital, so for the moment he is still on the GMW under 24 hour surveillance by 2 or 3 nursing staff. He is a massive danger to everyone and to himself too. It’s just so sad, where has my amazing lovely dad gone?
Just 3 weeks ago we were on holiday and he was absolutely fine.
I’m just wondering whether anyone could help me please? Does anyone have any knowledge or understand any of this of what I’ve just explained?
Does anyone have advice on hallucinations and delusions and can people get better from it or has my dad gone forever now? Have I lost him? I’m at a total loss. I’m petrified and so upset, I just don’t know what else to do?
Thank you very much for reading.