My name is Nela, my mother has been diagnosed from PD cca 15 years ago.
All my life she has been “head” of the family. She had full time job and doing all home activities. She was diagnosed from PD but she was living her life normally. No one could tell that she is sick… only thing that was happening is tremor of left hand (sometimes).
After some stress at her work, her condition become worse over the night. She could not move.
After that was stage of shoock for her, my dad, my brother and myself… She was crying and screaming all night, my best dad is the most patient man on this world. She helped her 100 %.
She started to had hard convulsions in her muscels. Crying, crying, more crying… she had many sleep problems at the beginning. Meanwhile, doctor gave her that pump (I don’t know real name) and helped her a lot… she could make normally lunch and everything else.
Now, few years after her stage started to become bad… I don’t know how to help her. She sleeps alot and have lot of hallucinations. We can’t leave her alone (and we are all working in the house). She starts to do one lunch, then other, then forgot that she turn on the owen etc…
I am feeling very sad. All the time she sees someone that is not in the house… some kids, some woman, all the time she has feeling that someone is here.
Two days ago, she woke me up and to ask me “what is going on with her” and started crying. I feel like sometimes she does not recgonize my dad, and he gave al his life to her. Sometimes, I feel like she is angry with all us.
Always I try to be positive with her and joke, but she does not get it sometimes, starts crying…
I can’t be strong all the time. I have feeling that I can’t talk to her aynmore…
Sorry for my bad english, I am from Croatia.
If someone could sare your experience… how family, how daughter can help her???