Has anyone got a loved one they are caring for who has Parkinson’s hallucinations? My husband is continually seeing people in the house and garden. It happens mainly in the evening and at night although it does happen during the day as well. He wanders around the house telling them to leave, but of course they don’t. I have started double locking the door as he has been found walking outside without shoes or socks or a coat on a cold early mornings (2am). He says he is chasing off the men and woman who were in the house.
Also, I’ve frequently woken in the morning to find my iPad, watch, laptop and other expensive items laid at the bottom of the bed, he said the people are trying to steal them! Because he can’t move his legs very well Im continuously waking-up in the middle of the night to help him in out and out of bed, which is exhausting.
If you need advice as a carer for someone with Parkinson’s, we also have information for you. it includes support that is available to you and tips to look after yourself: Caring for someone with Parkinson's | Parkinson's UK
Please take care and reach out if there is anything we can do
My Husband swears there is a man in his bedroom everynight - He cant see who or work out if he is there to protect him or hurt him. He ends up leaving the bedroom hoping the man will disappear
He has also had visions of a cat snuggling on his bed - He has never had a cat !
I did read (or hear on a podcast) that if you see someone that’s not there to reach out to try and touch them and of course you can’t so it tells your brain its not real then they go.
The movers and shakers have done a podcast on hallucinations which might be of interest.
I am replying to this post because I too have brief visual phenomena for the past 4 years.
Sometimes I see very brief shadows beside or in front of me or I mistake a tree for a human, a piece of clothes for my cat or an unfamiliar person for a family member. Occasionally I see a person sitting on a bank or chair where no visual stimulus is present.
These phenomena fortunately last only for a very brief moment before my brain corrects them.
I have days and episodes where I am experiencing around 10 or more illusions a day and others where I see those things only rarely.
I don’t have a PD diagnosis and also don’t take any meds, but I am having some atypical parkinsonism signs for the past few years.
I also have MCI (mild cognitive impairment) for around 10 years now.
There are some clues pointing to a possible genetic cause (unexplained low ceruloplasmin level and family history of some similar issues) of whatever these neurological symptoms could be.
Hi @chriss86, thank you for posting your note here.
Some people with Parkinson’s may experience hallucinations or delusions. They usually happen as a side effect of your Parkinson’s medication. But in some cases they may be a symptom of your Parkinson’s, or another condition, such as dementia.
A doctor told me once when I had an infection in my thumb ‘when you have more than 3 worse than normal PD days, look for an infection’.. apparently infections when not caught early can be brutal when you have PD
Also you haven’t taken any common cold remedies have you? I found out the hard way what a couple of days of taking Lemsips can do to you.
Did you relate to my post? In my case dehydration and frequent infections can be almost surely ruled out. I am 40 yo and have a strong immune system and only get some colds lasting for a few days, which is a positive fact, but unfortunately rules out these possible causes for my visual issues.
