Just wondering if anyone here has experienced or cared for someone with hallucinations?
I know there can be number of reasons for them from progression of the disease, medications etc.
How do you deal with them?
My loved one has distressing hallucinations which have led to some very stressful situations as they don’t always recognise they are not real. They started small and have become distressing and more frequent.
We try and reassure them they arent real and encourage them to be open with us and medical professionals about them. However, they don’t like us telling medical professionals, says he doesn’t want to tell us as we’ll ‘rat on him’.
Hi @Em2, thank you for reaching out to the group. We’re sorry to hear your loved one is struggling with this. Hallucinations can be really distressing for everyone involved, and it’s understandable that you’re finding this hard too.
If you’d like to talk things through with someone who understands what you’re going through, our free, confidential helpline is here for you: 0808 800 0303. We’re sending you all our best wishes and hope things improve for both of you
Hello @Em2 .. I haveing one hell of a time with my wife…. It started with olfactory hallucinations ( smoking smell) 3 years ago now she says not hallucinating , I think it’s now paranoia and delusional behaviour .
She’s fine one minute and then she changes and like it for the rest of the day , chatting to absolutely no one , having a full blown conversation with …. No one
The next minute she’s looking out the window saying her auntie is out side , no one there. But in her mind …. I’m wrong .. she’s right .. and i get told that I’m being stupid for not seen them.
A couple of weeks back she was trying to look for someone in a local military barracks .. we don’t have any thing like that around here and she always has a persons name that she believes is coming for her .. all I here is. “ Chris” is coming have no idea who he is .
Progress. , my wife has had it for 20 years…. Young onset. .. it’s now getting to a stage that one minute she’s wonderful the next. I want out ..
I can tell you … it’s hard trying to tell the person it’s not real … in there mind it is , I have asked. Nurses , doctors, others how do I deal with this …. Not one of them has an answer unfortunately each person is so different in there believes that I don’t believe anyone can do the right thing for their loved ones .. but don’t give up .
I feel for you…. No one tells you of the problems with progress , I’m on my own trying to deal with it everyday. I’m have said try to get your mind active with games ,crosswords , trying to divert attention BUT. it takes two …. And unfortunately I’m busy doing the housework or something and all her friends have now “disappeared “ …. Can’t understand her , don’t know what to do to help.
I could be to much dopamine as in stanek / stelevo. Rotigotine Patch, after some years it seems to make you hallucinate. Were trying to get rid of a rotigotine Patch
Hi Polomint,
Have you taken her to a psychologist or psychiatrist.
I would suggest a psychiatrist as they could prescribe antipsychotic medication.
If she totally refuses to go what about your doctor?
You could say you are both just going for an annual checkup and he/she could perhaps prescribe something that may help.
I hope this helps even in a small way.
Hello @CliveV I don’t believe what doctors say to me anymore.. I have been told. That I’m making my wife delusional ! Been to see mental health 3 times …. Never asked or offered to treat delusional / paranoid behaviour .. all thay want is to test for dementia.
So 3 times my wife has had a ACElll test 44/100 -88/100- 74/98 been told its dementia and twice I have told them . You have not completed the test correctly. The diagnosis has been withdrawn twice. It’s now MCI
Would like to see a psychiatrist or a psychologist. No idea how to…. Doctors just say it’s progress…. See your pd team .. they send you to mental health round and round
We’re so sorry to hear this has been so challenging for you and your wife. We hope the link shared above has offered some help for you. We also would like to share our helpline number again as out team are always here to listen Please do give us a call on 0808 800 0303
I’d be a little careful with the suggestion about secretly getting medication prescribed. It’s better to encourage her to speak with a qualified mental-health professional directly, while supporting her without pressure. A safer reply could be:
I agree that getting professional support could be really helpful, especially if she’s experiencing symptoms that are affecting her daily life. A psychologist or psychiatrist would be in the best position to assess what’s going on and discuss appropriate treatment options. If she’s reluctant to go, perhaps starting with a regular doctor’s appointment could feel less intimidating. Hopefully she’ll feel comfortable accepting some support, and it’s great that you’re looking out for her.
Hello @staroro84 I don’t think you read that correctly.. this is only my experience we have seen mental health all they want to do is give you another badge called “ dementia” they don’t want to see or treat paranoid behaviour , even though my wife showed this behaviour at the time , they give her a test called ACE III . which should only be used with caution on Parkinson’s patients , it was never tested on Parkinson’s hence you will get a low score and be given dementia diagnosis. . *. Dementia Revealed What Primary Care Needs to Know *
We would never use any medication unless it was given to us via doctors or hospital .
