This is a bit embarrasing to admit but could do with advice. does anyone deal with hallucinations. when I was sent to psychiatrist a couple of years back he said it was neurological. They normally don't bother me but when I,m stressed then they can be scary. At no am stressed dreaded ESA assessment coming up. Have even thought at times being watched and followed. Be glad when can calm down again. Any tips welcome.
This information sheet looks at Hallucinations in Parkinson's, which you might find helpful: https://www.parkinsons.org.uk/content/hallucinations-and-delusions-parkinsons-information-sheet -
Hallucinations can be a side-effect of medication, so it would be worth speaking to your GP, specialist or Parkinson's nurse about this.
Thankyou have read through link. Have spoken to a GP at my drs surgery. Not sure if she looked more panicky about it than
I feel. She also wants to wait to see what datscan reveals before recommending anything. Have decided to keep calm by making a new happiness book, basically a scrap book of anything that makes. you happy. Hoping calmer times will resolve issue
Good name. I have been dealing with hideous visions and dreams for twenty years when first encountering this terrifying distressing symptom of PD I had not been diagnosed though when I think back all the signs were there but its the visions that used to cause the most fearsome difficulties as the dreams were so detailed I would retain them throughout the next day or two and they fired off the visions, I had to sleep alone as I struck my dear wife on numerous occasions while doing battle in the dreams and I STOPPED going to bed in fear of the encounters I still see Dad standing in the corner of my room, he passed 4 yrs sin, however over the years I have learned how to deal with this nasty tool in parkies box in much the same way as Police Ambulance and Firemen learn how to cope with trauma every day, I have simply hardened my psyche and when a horror vision appears I say oh bu???r off if thats the best yo can do and it works though as I said it has taken years to attain this method so I wish you luck sir
Thankyou. You have had an awful time. Most of the time mine are OK, usually cats rodents peacocks and a large black bird like a constant and my nan sitting in her favourite chair with her cheeky grin. But when stressed things turn nasty and nightmarish. Will have to learn as you say to deal with it. Not easy for oh either. I don't think I have attacked him in my sleep but given him a scare a few times.
Hi I get phantom smells anyone else get these ?
cant help there, my taste and smell went 10yrs ago only bitter sweet or salty taste left
Hi jenny - I get a good few 'phantom' smells at anytime during the day, it's unusual because I lost my sense of smell and taste a long while ago, yet I still manage to get these certain smells coming through. What's more unusual is my hubby can't smell them! They vary as well, but the most eerie one is cigarette smoke, neither of us smoke!
Hi Jenny and all,
It's weird but now you mention it for about a week and just after I had upped my Madopar, I started suddenly to get the smell of gas masks. Something I haven't smelt since the war when me and my twin wore Mickey Mouse gas masks when the sirens sounded.
Hi OTAnheavy and Porthos,
thankfully I don't get hallucinations. But I do get very vivid dreams, in which sometimes I lash out either due to protecting myself from a missile or catching a ball. A lot of the dreams are recurring and I have an amazing capacity to remember them.
On the humorous side, It might sound daft but for nearly a week I dream't I met Queen Elizabeth (the second that is) at Buckingham Palace and became her Confidant, It was so real that I had difficulty in accepting it was a dream. It lasted about five nights. I remembered it so well that I actually wrote it down as short story. Was thinking of posting it on the creative corner but could be in trouble with the establishment if I did.
The dreams are more vivid and more real if I take two Madopar CRs at night instead of one. So clearly they are linked to the drug.
So sorry to read about the hallucinations. It must be frightening.
Is that Guinea Pig a show winner Porthos?
The smell I get is gas don't get it all the time sometimes go weeks then out of nowhere it's so strong it makes my eyes water but no one else can smell it x
Have no sence of smell anymor but when I was on a certain anti seizure med I had a constant aroma of disenfectant stuck up my nose. It started within days of starting that particular med and vanished when I stopped.
He,s a show winner in my eyes. He does these amazing showing off poses when he realises he is being watched .
I,be heard of a dream journal where you record your dream and do a little illustration of it. I,d love to see your story, it sounds quite intriguing.
I,be had a dr keeping an eye on me for the last few weeks and it does seem the scary hallucinations peak with stress and not only am I in the process of waiting for datscan to confirm DX, or throw things back to the unknown, I have going through the pip and ESA assessments within a couple of weeks of each other. Not good timing. Am hoping for more peaceful times soon.