Have you had to tell children or grandchildren that you have Parkinson’s?

Hello everyone,

It’s me again! :blush:

Have you had to tell children or grandchildren that you have Parkinson’s?

If you have children or grandchildren, how did you to talk to them about your
Parkinson’s after you were diagnosed? Maybe you worried about how to start the conversation or how they would react.

Perhaps you have thought it’s easier not to tell them at all. We are putting together an article for our online magazine about talking to children and grandchildren about Parkinson’s and would really like to feature your own tips and experiences that we could share with others who find themselves in a similar position.

We’d love to hear about your experiences so please comment on the thread below. :point_down:

Hi there not been on here for a long time. As I have been ill for some time…and now all I’m doing is falling all over the place. Apologies I digress. I have 2 grand children ages 7 and 4.it
Actually a couple of years ago that I spoke with my oldest granddaughter I showed her a book called my gran has parkinsons she loved the story and after I had read it to her she said to me I know that you are my gran and that you have parkinsons and I Iove you just the same…I will now need to pull it out again to read to my
Youngest grand daughter. It is a lovely short story with colourful pictures.
Regards. Babs x x x

Hi reah I don’t know where to ask this question. I have change my email address. deleted by admin

Do I register as a newbie. Maybe you could advise me please.

Thank you Babs W

Hi @babswood,

I have changed your email address on our system and have sent you an email to confirm the changes made to your account. I’ve also removed your email address from your post above to for data protection purposes. :slightly_smiling_face:

Best wishes,

Thank you for your help


Reah unfortunately I did not receive your email my email address’s is removed by admin

Hi @babswood ,

I have resent the confirmation email address to the new email address. Please let me know if you have received it.

Best wishes,

No I did not get it I checked again and the email is actually

So sorry for all of this.

Hello Babs, I’m moderating the forum this evening. I have removed your email just for data protection, and I’ll look into getting you a new password set. It might be that I’ll need Reah’s help with this on Monday, but we’ll do our best to get you sorted. best, Lucy - moderation team.

1 Like

Thanks so much

Hi I’m not sure if this is of any use but have you checked your spam box? Sometimes if an email address isn’t recognised it can be put in there.

Hi @babswood,

So sorry you’re still having issues with this. Nufcash is right, have you tried checking your spam folder?

Please let me know.

Best wishes,