Hi @Pauline47 and welcome! Yes, people still certainly use the forum, although we notice you posted this in an old thread.
If you navigate to the main page you can see categories and threads based on what your post is about. Often conversations like this can be found in the Carers, Friends and Family category: Carers, friends and family - Parkinson's UK Forum
Because this is having a big impact on your sister’s day-to-day life, it would help her to talk to a GP who can assess her symptoms in person and, if needed, arrange appropriate tests like blood pressure measurements.
You can encourage her to keep a symptom diary noting when the pressure is worst, what she was doing, and any other symptoms. That can help guide her care.
If anyone here has similar experiences, please share what helped you or what tests you found useful.
And if you or your sister need to be in touch, please remember we’re here on freephone 0808 800 0303.
Sending our warmest wishes
The Parkinson’s UK Moderation Team 