I have PD, but no-one else in my family that I know of has ever shown signs, so looking for patterns may not necessarily be helpful.
PD has many different symptoms and everyone suffers with combinations of them. My main problem is cramping legs - particularly through the night when I wake because I am writhing about in the bed. I also have vivid dreams when I am shouting out and am woken by my husband.
Worst of all is the feeling first thing in the morning when my cocktail of medications has yet to take effect - my feet cramp so badly that they become completely distorted - clubbed - it is agony and can only be relieved by massage or in the worst case, Diazepam.
It sounds as though you need to be seen by a PD specialist who can confirm, or otherwise reassure you. If you are not happy with the Neurologist you are seeing, then ask to see an alternative one - you do have choices. Keep hold of the fact that the only one who knows your body is you and you are therefore in the best position to judge when things dont feel quite right.
Keep on it until you are diagnosed or given the all clear.
Good luck and hope it all works out for you.
For what it is worth you sound perfectly sane to me.. If you opt to ask for a second opinion and , as several of your symptoms seem to point to PD (which is why you posted here), I would make sure that you see a neuro. who specialises in movement disorders. Although the symptoms are PD are many and varied, PD comes under movement disorders.. As a young woman, even in 2015 one is liable to be patronised. I read once that even specialists in other fields find neuros. can be somewhat arrogant. In case it fits your case, "motor fluctuations may be up to 50% worse for a few days before and during menstrual periods" (Daily Telegraph Guide to managing PD).. Try the helpline above.
Unfortunately for you, because PD is rare in people of your age they need to be even more thorough in ruling out other more likely causes before they can come to a diagnosis of PD which is made on a clinical basis.. There is as yet no foolproof bloodtest or other biological .marker.
I hope the foregoing ragbag of info. will be of help to you
All the best
Just one piece of advice that should help you. When I went for a lumbar puncture I was in an empty ward when the doctor arrived to perform the test. Having successfully completed the procedure he promptly left and a nurse arrived.
Within 20 minutes I was told that I could go home as the test was complete. I just about made it out of the hospital and to the bus stop, luckily with my husband, before the mother of all headaches hit me. The only way I could relieve it was by laying across the back seat of the bus till we got to the Park and Ride. My husband got the car and loaded me in - laying on the back seat.
To cut a long story short, I spent the next two weeks flat on my back. Any attempt to get upright caused a headache that I will never forget.
I since learned that you should lay very still for at least four hours following the puncture to allow the fluid in your spine to settle and the hole created by the needle to seal itself.
I am not trying to frighten you at all - just make sure that you have the correct instructions just in case you are told you can go shortly after. Make sure you lie still for at least four hours before leaving. I would not wish anyone to go through the two weeks I had.
Good lord i'm glad i didn't have a lumber puncture, what part does it play if parkinsons is suspected?. surely this is why a mri is used?. sounds like sadism, but then nerve conduction tests running a current through your knee and bicep and moving it is as well. but that is too dismiss Motor neurone disease?.
I don't really have any advice, but I just wanted to say I emphasise with you, and I am so sorry that you have to go through this. I was diagnosed in my mid 30s after 10 months and the waiting for the diagnosis and just knowing that something is wrong but no-one can tell you what was awful. I started thinking I was imagining things especially my exhaustion.
You sound like you are coping really well. Stay strong. I hope you get a diagnosis very soon.
PS I was clinically diagnosed and then sent for a DAT scan to confirm.
Dear Sea Angler
At the time, the consultant wasnt sure whether I had MS or PD so they did a whole raft of tests to rule out the MS.
I also remember the electrical tests on my feet and legs - they were also very unpleasant. Again, these tests were to rule out other diseases before they made the diagnosis of PD. I did eventually have a DAT scan which also proved PD.
i can understand your frustration , i think and this is just my take on things its not a medical opinion , you say your mid twenties , most neurologists would not immediately consider parkinsons as you are so young but saying that younger people can and most certainly do suffer with pd, i think at your age it it more of a case of ruling out other possible conditions before coming to a possible pd diagnosis