Hi guys i am Natalie,
I want to introduce myself but also i want to vent, scream, cry, be confused, ask lots of questions, gain support and provide support to others if i can.
I have just been diagnosed with young onset parkinsons (i am 31).
Now this would be a shock enough… but they fact it has come after my neuro told me they originally didnt make the correct diagnosis in the first place and now i have to re-learn everything in my news life from my other life where i learnt to live with having MS!! Yes thats right. I have had MS for 3 years except i didnt… i had Parkinsons.
I am now really struggling with the error and my head is a mess. Tbf i didnt ever agree with the MS diagnosis and the Parkinsons diagnosis actualluly makes more sense. My brain is just trying to process it all
Now i have the correct diagnosis i can now actually ask relevent questions.
Please can anyone tell me if they have the following 2 issues?:
I cant walk near people. If i am walking on the street or shopping centre for example and i happen to catch up to the person is front… or someone comes out of a shop etc and is in front of me my brain and legs go into over drive and its like i suddenly forgot how to walk normally. I really need to get in front or im a mess. My legs and brain dont know how to handle it. My neuro said it is normal and similar to freezing in doorways but didnt offer any advice or help. If anyone else suffers this please any help would be amazing.
The second issue i have is memory. My memory has been a bit rubbish for a while whilch i have incorrectly be putting down to ‘ms brain fog’. But it has gotten a lot worse lately. I can remember normal stuff like the date, priminister etc it is annoying instant memory things. Like for example someone will want to know something and will ask me to google it. I will open my laptop… bam… no idea what i was to google… absolutely no idea. Its like a few seconds and its gone. It is like this all day everyday. I know its monday and i know i have a salon appointment but can i remember why the hell i picked the phone up. Can i hell!! Who was i going to phone. Why was i going to phone them? Please tell me this is normal? What i can and cant remember is all over the place and i am scared i am getting alzhimers. Please tell me this is a normal PD thing.
Sorry for the long post :(