That is officially diagnosed, though I suspected it for a couple of years. In the beginning, I just had tiny tremors in my fingers, which I could stop. I didn’t connect that to the fact my legs had slowed, and I struggled to get up from many chairs. That I put down to age as I was over 70. But things drove me to my gp in January, voicing my concern. She was pretty sure my condition was not neurological. Lockdown came and my husband and I did our daily walk of about 2 to 3 miles, but more and more slowly, and taking shorter routes.
This drove me to the gp again (a different doctor), by phone. I was putting symptoms together and could see where they were leading. I suggested PD, and he suggested he SEE me. Did some physical checks and said he would refer me. Since then (June) I’ve had my neurologist’s appointment, and last Friday started Madopar. In that 2.5 months I have gone seriously downhill, but the Madopar seems to have started working a little, and I have to double the dose from the second week, so I am hoping to get my life back.
I have been interested in how other people take their drugs - before meals, with or after; what is written on th bottle and what the leaflet inside says. Little consistency.
I think I need to see a PD nurse but gather they are in short supply where I am.
In the meantime, thank you for reading.