I've just joined, because I've been lurking here and reading lots of posts that sound just like me. My mum has had Parkinson's for 16 years and is in a bad way, so the thought of having this myself is especially worrying - hence my being in denial for such a long time!
I'm 41 now, and for many years, (at least 10), I've had strange spasms in my hands and other body parts, although this has very much been off and on. I also have times when my facial expression is very frozen, especially when I'm stressed, (I even remember this happening when I was at school and very nervous. My voice would also stay at one tone, so I was like a robot). People have told me before that I don't move my mouth much when I speak. And my daughter can't tell sometimes when I'm happy or when I'm angry. I've also had internal tremors when nervous for several years. And it's all been very on and off, so when doctors have put it down to stress I've thought that they might have a point.
Life has been very stressful for many years as I've been responsible for my mum's health and well-being, and that's meant that I had to give up my job, and haven't had so much time to spend with my family. This has coincided with my getting strange pains in my head and my body, a much more constant internal tremor on the right side of my body, and the (left) side of my neck, pressure and pulling feelings in my head and now visible tremors that happen several times each day in my left thumb and eyelid.
All this is further muddled by the fact that I have Ehlers Danlos Syndrome, (hypermobility type). My tremors are in my loosest joints, so I often ask myself whether joint laxity could be the cause. (Although I think this is probably wishful thinking on my part! Because I know that a lot of my symptoms are also ones that my mum's had).
I've been to see the GP recently and she says that these can all be symptoms of anxiety. (They've said this each time I've been). She was reluctant to refer to me to a neurologist, but said that she can if I want her to. She said I should try to reduce the stress in my life and see what happens. That seems to be an impossible thing at the moment, so I may go back for a referral.
So that's where I am at the moment. My thoughts are: would there be any benefit to diagnosis at this stage? I can cope with my symptoms as they are now. I feel like I've had lots of them for a long time. And I'm nervous to go on medication, as I feel that the side-effects have not been good at all for my mum. (Genetically we seem to be very similar...) Although obviously the tablets also helped her function for a long time. If I knew for sure that I have Pd, would I become even more anxious and lose hope? Would life be better or worse with a diagnosis?
I know most of these questions are impossible to answer!! Just my thoughts. Sorry this post is so long.