Hi y’all is there such a thing as saying hello too many times?
Im not yet 30. Recently YOP was confirmed. My neurologist recommends meds however this is something I want to see if I can avoid for as long as possible. He’s referring me to a parkinson’s specialist (which I actually don’t want since I like him. Although I’m also lucky to live where the NHS have parkinson’s specialists) so whenever that goes through I’ll discuss that in more detail with him.
Anyways, so thank you all for being here. I’m grateful to have come across this forum.
Hi, sorry to hear about your diagnosis. Glad you’re taking it so positively. There’s lots of information about PD on parksonsUK, there are also some sites specifically aimed at YOPD, such as spotlightYOPD.
It’s definitely worth seeing a neurologist who specialises in movement disorders. There have been changed over the years about when to start medications and which to use in YOPD so the extra experience they bring will be valuable. You may also be able to see a Parkinson’s nurse who can be invaluable.
There’s a YOPD zoom meet up once a month. If you do a search on the forum you should find the thread .
Yeah my neuro thought the same about seeing one who specialises. I googled him and his research so there is that. It doesn’t change that I liked my neuro though
I actually saw a neurologist privately a year before and was much happier with the NHS one. Even though that was a full year later (for an urgent referral)! Welcome to the national health service
It’s brands here! I just want to say thank you for helping me on my original post, it meant a lot to me.
I feel the same way as you, I think I would try and put off taking them for as long as possible too, I think it all depends on how you’re feeling. I hope everything goes well with the specialists!
is there such a thing as saying hello too many times?
