Hello! 😊

Hello, I have just joined the forum this evening. I was diagnosed last October 14th to be exact. I still can’t seem to get my head around it. I turned 60 in July and so many different things seem to happen on a day to day basis that I don’t know whether I’m coming or going. The latest thing which happened today is that I can’t stop crying. This really surprised me because I try so hard to keep a brave face for family and friends. My mask slipped today and I don’t know what to do about it. Sorry this introduction has become a plea for advice. :cry: thank you in advance to anyone who can offer some pearls of wisdom. X x

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Hi CatherineY,

Welcome to the forum, thank you so much for sharing this. No need to apologise at all, it can be very hard to adjust to and tears are totally normal. We’re sure the lovely community members here will be able to share their experiences soon but in the meantime if you’d like to talk to someone about this our helpline is always here. Please do give us a call on 0808 800 0303. :blue_heart:

All the best,
The Parkinson’s UK Moderation Team

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Hi CatherineY,
It is totally understandable that you have opened the dam and let the tears flow.
Please don’t keep everything bottled up, that just makes it worse.
Go into your room/outside and cry & shout & scream & tell chairs/tables to get out of your way when you stub your toe on one.
We have all been there, done that, got the T-shirt.
Crying does really help and release release tension
Honestly let it out.
I was diagnosed about 5 years ago now, and the first reaction is ā€œwhy meā€.
Then I realized ā€œwhy not meā€.
Yes we have it, and it is a bugger.
I have found that exercise definitely does help. I go to gym 3 times a week and cycle once or twice, but just a brisk walk a few times a week is also good.
I think that is why it has progressed so slowly for me.
And please, please don’t be embarrassed, we all are here to try and help each other.
Ask whatever you want whenever you want.
The moderators are also great to help.

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Hello @CatherineY … I have been careing for my wife for 20 years she’s now 63 .
I have managed to not cry all this time … But it’s very hard , I have a lot of of stuff in my head.. it changed me ..
I will one day let it all out …and have been told I must let it go .. I need to chat to someone… But have know idea who to .. I don’t trust people. After dealing with so many doctors, PD nurses. And with no friends..
Im glad you have said. Hello… :smiling_face_with_three_hearts:

Cry .. please …don’t. Hold it in like I have …being diagnosed with Parkinson’s.. at any age is a life changing thing … Not just for you. It’s a family thing..

All my dreams went back in 2007 … We had So many plans for our retirement…

Your Birthday is in July… We must be twins … .. 8 years apart…

Dam this Parkinson’s…

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Thank you! Clive V. Your comments are very much appreciated. I guess I can just take things one day at a time! :blush:

Hi Polomint,

Thank you for your comments, it’s very much appreciated. I’m sorry you are having such a hard time too. I guess these feelings will come and go! This is a great place to help each other , whether you have Parkinson’s or are caring for someone. We all need someone to talk to. Take care of yourself too. C :smiling_face_with_three_hearts:

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Hello @CatherineY appreciated thanks. Bit of help /chat goes a long way .
.. hard times yes , my wife is very stubborn and as the years go past she seems to get harder to help , I don’t meen she is getting worse as in Parkinson’s, I know progress yes but that has been very slow and we sometimes wonder if it is Parkinson’s. !
She just will not help her self, as you know tablets have to be taken " on time " well over the past 2 years medication has been totally screwed up .. not by me but by the local PD nurses.. and of course. …it’s my fault , I had to remind her at this point. That I put my life on the line to get her PD team to listen ( yes I was almost not here anymore due to PD nurse team and there attitude ).
tonight another big stand off about her not taking her medication on time , of course I know exactly how many tablets I have got ready for the day ..
When she doesn’t take them she’s not walking very well , she becomes very delusional and her speech is not very good..
Then I tell her that she not helping her self by not taking the tablets. But she can’t seem to understand this… As all I get is. I’ve taken them .
This has happened before but at that time she was sorting out her own medication every day and no one realised that she was hidden it around the house instead of taking it , as she was happily doing stuff she was making enough dopamine to keep her self moving then one day she just kept falling over that’s when I realised something was wrong..
I have numbered boxes now and get the medication required for the day ready and dubble check it . But obviously I can’t be around watching all day long .. to make sure she’s taking the medication.

How do you deal with your medication every day. As you must be on some tablets.
Does anyone help you … Please if you have any good remedies for me to try.
Thanks g​:mouse:

:mouse:

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Welcome to the madhouse @CatherineY :grin:.
Yes, it’s difficult. I’m 58, diagnosed in 2021, retired military, thought I was tough, could take things on the chin but, like a volcano, pressure (emotions) build up and eventually, bang, you cry, get angry with the world, life etc. I do it every few months I guess, my Mrs (my rock) will agree. I think it does help and guess what, it’s natural.
Cheers
D