Hello


#1

Hi everyone

I'm carer for my mum, who's 91 and has a tentative diagnosis of Parkinson's after a hospital admission earlier this year for pneumonia. She had a stroke some years ago that left her weak on the left side, but we had been suspecting for a few weeks that something different might be happening that was affecting her right side too.  She's currently on Sinemet and Pregabalin for her anxiety, and is due to see a neurologist in September. Although I had been wondering whether she might have Parkinson's, it's all new to me, and very bewildering!

Good to know that there's a community like this for support!

C

 


#2

Hi LAM, this must be tough on your mum, as well as on you and your family. We all talk about PD diagnosed at "normal" ages (65ish) and early-onset.But I'm not so sure much attention is paid to later-onset. It must be bewildering all round, including to the medics. Keep us posted.

Best to all

Semele


#3

Hello, LookingAfterMum, and welcome to the forum!

You are right about the support from this group.  I have benefited greatly from the knowledge of some forum members and just from the sympathetic responses from all.  As a patient or as a caregiver, you're not alone.

I hope the neurology appointment yields a solid diagnosis for your mum.  Waiting in suspense is always so difficult.  Write again and let us know.

Sincere best wishes,

J


#4

Thanks both, and sorry to have been so long getting back - I went back to work last week, and things have been a bit hectic!

Mum's first neurology appointment is tomorrow, so if you have any tips or thoughts as to what to ask or expect, they'd be very welcome!

Thanks again,

 

Carole


#5

 

I expect her Neurologist  will start off with what they call history taking, taking notes on her past, symptoms ect, i gave my neuro a sample of my hand writing and a list of my symptoms even small things you might not think is relevant might be too the neuro, he could already see i had a tremor,

he then done a examination, my walking,movement, reflexes and so on. 

then followed a talk about what he thought and the path he intended too follow next with test too come too a diagnosis.


#6
> any tips
 
I found it useful to go prepared with a list of symptoms and rough timeline, plus whatever I wanted to ask.
Wouldn't otherwise have remembered some things in heat of the moment.

#7

 

Thanks all - and sorry to have been ages in posting again: things have been a bit hectic with my return to work.

As an update, the consultant was really nice and fortunately has a sense of humour as mum was at pains to let him know what a personable young man he was!!! cool  ... this was after she'd mentioned her main problem was drooling .... anyway, he's written to the GP with a "pragmatic" diagnosis of Parkinson's, since he said the only way to be sure would be to stop the meds and see what happens. SInce none of us is up for that, I think we do have a diagnosis ...