I have a few concerns and subsequently, a couple of questions. I'll try and keep it brief. It has been a strange ten years of on and off symptoms, which started with balance and dizziness issues, tinnitus, poor co-ordination, muscle fatigue, espeically in legs. I also started to get (what I now know to be) dysautomnia symptoms, including postural tachycardia, low blood pressure, digestion issues, body temperature problems, brain fog etc. I have had PoTS diagnosed February 2017 and am taking Midodrine.
I have now, however realised that my left arm doesnt move ike my right when I walk. On reflection, I have kind of noticed this as it is summer and I am not wearing coats with pockets and also we are doing the house up and there is a mirror been posiitoned at the end of a walkway, so I can see myself. The best way to describe it is like it just sits idle by my side, either passively or almost nestled into my body or I hold it up so my hand is at chest level. An example of when I would notice it is when I say carry cups and things to the dishwasher and then need to use two hands and there it is, just stuck there. I have no issues using it when I need to but basically what I am saying is when I'm *not* thinking about it, it doesnt do anything and definitely isnt like my right arm. It also feels a little different, but I cannot really out that into words, it also tires easier than my right when typing, feels a bit weak in comparison.
I know I should really go to the GP but after ten years of battling with a set of symptoms that have baffled doctor after doctor, I'm not sure I can face going with what they will see as yet another symptom if it might be something else, I reckon they have me down as a malingerer as it is - the PoTS symptoms have a tendency to do this as it affects lots of aspects of normal health.
I've had dozens of tests, scans, MRI and had lots of conditions ruled out.
Million dollar question, in light of my other symptoms, do I pursue this further? I guess I kind of want to hear what other peple think as bits of me are a little scared and I havent mentioned this to anyone else as a result, not even my other half....
Thanks in advance