Hi my name is Wullie, i was diagnosed on June the 3rd after going to my GP for 2 or so years and being told i had essential tremor. They eventually got fed up with me and referred me to a neurologist at Ayr hospital who also told me the she did not think i had PD but ordered an MRI and a SPECT scan, MRI came back normal but the SPECT scan came back abnormal she then told me i had PD. I have severe tremor in left arm and leg and not so violent in my right, i also have stiffness in my neck and have problems with my short term memory and can't find a lot of words when talking to people also i stumble quite often. My Neurologist never really gave me much information after her diagnosis but told me it will get worse and i should come on to PD UK and read up on the disease and the drugs used to treat it I have been referred to the Parkinson's nurse and the memory clinic so we shall wait and see. I must admit i am now coping with the thought of having Parkinson's and getting on with my life.
welcome to the board. I were diagnosed in April 2016 but had tremor some time before that. Your neuro is right you can learn alot from this board and they all make you feel welcome. The thing I have learnt is we are all affected in seperate ways so no 2 of us are alike and meds are different. When dx i were offered group therapy but couldnt sit in a room with others sharing thoughts. However in here you can ask anything and someone will help you. And if you find youre on a low day then you dont even have to join us.
Take care John
Welcome to the forum.
As Smoggy has already illustrated, you are not alone. There's lots of people here who'll be happy to share their experiences with you.
As your neurologist said, there's a lot of information on our website, amongst which is this introductory guide to Parkinson's: http://bit.ly/1R2vKLD
Did you know about our helpline? You might have questions you'd like to ask about living with Parkinson's. If this is the case, please feel free to ring us on 0808 800 0303 (Monday-Friday: 9am-7pm, Saturday: 10am-2pm) where you can speak to trained advisers, including Parkinson’s nurses.
Ilona (Moderation Team).
Good morning Smoggy and Still Me With PD. Thank you for the replies i'm quite sure i will have loads of questions in the near future so it's good to know there is somewhere and some others i can turn to in the time of need.
Aye aye wull
we all get by you will to welcome to the forum
I am new to site but have been diagnosed for six years. Ask me any questions you like, i will always reply. Please look at my posts on benefits. This is a great forum, best of luck