I'm female, 64, retired.
I'm not diagnosed with Parkinson's, but I've made an appointment with my GP to ask refer me to a neurologist because of symptoms I've had for the last two years. I first raised my concern that I might have Parkinson's with my GP about 18 months ago. At that time my GP did not think I had.
But since then a number of members of my family and friends have suggested that I seek a diagnosis. For my family members their concern is because my deterioration over the last couple of years is very reminiscent of my father's deterioration in the run up to his diagnosis; he died of Parkinson's five years later,suffering badly from dementia. Other friends who work with the elderly also remark on how my movement is typical of Parkinsons.
I feel very conflicted about getting a diagnosis. On the one hand, it is possible that I do not have the disease. I broke my left foot quite badly a couple of years ago and I've attributed my difficulty with walking since then to the injury, but it doesn't fully explain my movement problems; my shuffling walk, the difficulty I have getting out of a chair or a bath, my 'restless leg syndrome', or my frequent trips and falls. However, I do not have a tremor, but then neither did my dad, right up to the day he died.
But I'm quite frightened of a diagnosis because it would change everything. Our house isn't suitable,so we'd have to sell up and move into a bungalow. I'm carer for my mum who is 91,and I don't know what to do about that. All the plans we had for our retirement,my husband and I, down the pan.
I'm also very worried about the dementia. dad had it badly.