Hi there everyone, H0gg1t McFl0gg1t here!
Been off in the ether. Had my first meeting with PD nurse when called to PD clinic, didn't even get a look in with Consultant!! Tremor bad, so suggested an increase in meds, agreed, feel no better, just as spaced out!
Requested an appointment with PD physio as have been privately, and treated with caveats, also had to pay. Still awaiting hosp letter.
Been concentrating on exercising and amassing exercise dvds and have dusted off son's Wii. At least that will get some use, rather than residing in the loft!!
Funnily the insomnia is now not a problem, am fighting the crushing fatigue, that catches me out daily when I've not paced myself. Mental note to self; you can't do what you used to, take plenty of rest, and the odd cuppa!
Been away over the 1/2 term hols, was recommended a s/c holiday cottage in West Wales. Super stylish and cosy (woodburner to occupy hubby most nights), only downfall was bed not long enough for 6' 8" son, so had to rig up extension with odd bits of furniture! Looked like Steptoe and Son! We also had a problem with an exploding fly on his jeans, but that is another story! Ha, ha!
Need to tackle the washing, ironing and the dreaded fridge tomorrow (going in with goggles and gloves)! Also a visit down to in-laws, who don't know of my Dx so will need to keep tremor in check; haven't told them mainly because F-I-L has just been dx with PD and they are both not coping well with it.
I look after finances for my eldest bro, who is on Autistic Spectrum, although not Dx. Hopeless with money and finds it difficult to hold down a job. He has signed for a bungalow in an assisted complex that will suit him well, only problem is it is going to cost him a lot more and he doesn't have the financial resources, and he doesn't have enough furniture etc for it. Had this mega load of problems dropped in my lap prior to going away, so have had a lot on my mind. No other siblings wanting to give a hand, so looks like I am going to have to twist a few arms for a few crumbs of help. So I will be Mrs Popular.
Anyway there are the reasons I am not always here. Good to hear no major disasters, or have I missed them?? Take care for now! xx