Thank you for your reply it means so much that people I ve never met are there to reach out to to share experiences and offer support.
My symptoms were rigidity in my left thumb - stiffness and lack of movement in left hand and arm - have to say tablets have made a huge difference as I now move my arm when walking or running and stiffness vastly improved. Guess I'm lucky as no one can even tell thanks to medication. I do feel like someone is sticking a knife in my back though and going through phases of insomnia. Hoping medication will keep me in this honeymoon phase, as my neurologist called it, for a lot of years.
Its not knowing what lies ahead that worries me most now. I am a positive person just still in the trying to gety head round this phase.