Hi how are you today?

About Parkinson's and health Wellbeing
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Dollymaz, thank you for your generous assessment of my book.  Astoriasis, thanks for posting your poem.  I can see why the adjudicator and others enjoyed it so much.  Well done!  Since you asked if I'd share, I'll print here the title poem from my book.

                      ARTFULNESS AND OLD LACE

     There is a certain sound old sonnets make

     That rings like nothing else, a sonorous peal

     Which reaches deep within, reviving all

     We know of music and of love.  Its tones

     Toll true and clear in long legato smooth,

     Unbroken in their song.  Mellifluous words

     In closely patterned lines form rich old lace:

     Complexity so neatly woven that

     Its beauty is as sudden as complete.

     No leafy maze could more enthrall!  At first

     The sonnet mystifies, yet draws the eye

     And ear through schemes and curves until, amid

     The rolling sound, the core of sense appears.

     Such artful beauty, when in brevity

     Embraced, entrances both the heart and mind.

 

[Previously published in The Neovictorian/Cochlea,  Vol. X, No.1, 2007, Madison, WI]

302

 

Hi J & Astoriasis - I agree with Dolly you are both talented with your writing it would be great to read more of your poetry in the Creative Corner section of the forum. I to like Dolly am not creative in poetry but love to read the verses and give credit where credits due, so hopefully will read some of your work on there?

All the best - Sheila x

303

Hi Everyone

Thank you for your lovely comments.  Loved your poem J.  It was very different and beautiful, you have a lovely way with words.  and as for my friend Dolly who is my saviour if I am ever feeling down.  I only have to think of all that you have had to endure in the past year or so and your attitude towards to life and you brighten up my day.  Not forgetting Sheila, where would we be without you too.

so please keep posting lovely to hear from you all

warmest regards

Astoriasis

Ps did you see in the magazine re the day I went on in London thanks to Parkinsons.

304


Good evening Gals and (Guys)....aren't we a lucky lot? even though we have never met, i feel as though we have known each other for ever, this forum with you lovely people on it has helped so many of us to keep our chins up when they are in our boots. It is a great feeling to know that you are there. I am having a serious moment!!!! yep it happens occasionally!! and i read this today which i think is apt......Friendship bears all things, believes all things, hopes all things, endures all things........Friendship NEVER ends.

Now for some fun!!!! today on one of the forums i read about a chap with Parky who has written the funniest song and it is on" you tube" and called BLAME IT ON THE PARKINSONS by Mitch  Faile. Very clever, very funny and very apt. In fact after watching it i ordered myself a T.Shirt just like his from Cafe Press an American company, several styles and colours and the idea is that if anyone thinks you have been drinking because you are a bit unsteady etc then you open your jacket and flash the T shirt at them, which says Blame it on the Parkinsons!.....love it, i can't wait to receive it and start flashing!!!! haha.

Sorry Astoriasis i haven't seen the magazine, how did the day go?

Keeeeeeeeeeeeeeeeeep smiling everyone

luv Dolly xx

 

305

As the song goes

'Feeling crap crap crap' or should that be 'Hot hot hot'?eye roll

306

Friends of the forum,  

Is that how you feel, poor Pokerid

Bollux to PD indeed - its alright for some! 

To behave like a big kid!

 

But who can blame him,

Not me - I assure you.

You must be brave to say that

For which I adore you.

A silly two minute ditty, hopefully to make you smile.  You know, I think I see the hint of one trying to suppress your giggles.

 

Yes Dolly had a good day in London thanks to the Parkinson Society.  Lots of interesting people there.  we were made very welcome and asked to pool our thoughts and ideas of how to develop the artistic bent in people with Parkinsons because it is believed that for some people it heightens it.  ALWAYS LOVE HEARING FROM YOU

Feeling good now that I have got rid of (which followed one another) the bronchitis, flu, urinary tract infection and the bad tooth which took an hour and a half to extract. 

Warm regards

Astoriasis

307

Hi Astoriasis and all.....I have just sent a message and it disappeared into a void somewhere or other....really annoying. Anyway i'm back now and just wanted to say i enjoyed your little ditty, made me smile. Also  so glad that you are feeling much better now that you have all your bits sorted, that tooth must have been extremely painful....a friend of ours had an abcess last year and ended up with septicemia and was very poorly and hospitalised. Pretty scary time.

So pleased you enjoyed your trip to London and met up with some interesting talented people like yourself matey. It is wonderful to have so many interests, i bet you never get bored? I have been doing a little sketching recently mainly family, i do enjoy portraits but i only use a black pen, as soon as i show it paint it seems to go haywire! I did paint a couple of small tables last week !!!that is about my limit.

My PKG monitor has now been returned to the hospital and i will get the results next month, my old Mum thought that it recorded our voices as well!!! thankfully not! and Mr D had to behave himself as it records every movement! haha. I wouldn't be at all surprised if i get a call to tell me that the recording  went right off the graph a couple of times......! I managed to clean out the fish tank without it getting wet though i did manage to splatter it with a bit of paint!

Pootling off tomorrow (mon) for a few days break to  the Holiday village near us....managed to get another very good deal plus we had some vouchers....so no cooking for a bit and looking forward to a little dancing, and some fun. Though we come home knackered!! I never know when to stop that is the problem, i enjoy it so much and try and put the old Parky on the back burner....but the ************ reminds me that he is still around once i return home. Its like Cinderella isn't it? once the clock strikes midnight everything changes. Nemind ay????

Did you watch that video on you tube of Mitch Faile singing "Blame it on the Parkinsons" it is so funny and i did buy the T.shirt, well it is more of a vest top....well i don't know how they measure themselves in the USA where i ordered it from but  although i asked for  a large it has arrived looking like a boob tube!! stretchy fabric that could double up as a knee support!! i guess i could try that haha! I am a 14 but this is about an 8 !!!!!!!!!!!

I heard this Parky joke and think you will like it........An elderly gentleman in a nursing home  gets friendly with a lady and he says to her that when his wife was alive she used to hold his P**** in bed at night to help him get to sleep and it worked, so the lady happily did as she was asked for a week and he slept soundly. The following week he told her that he had found someone new...she was a little upset and said "what has she got that i haven't"? and he replied PARKINSONS !!! 

I'm still laughing.....and so is Mr Dolly !!!

night night

luv Dolly xx

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Asstoriassis, do I know you from another galaxy far far away? eek

309

Ooh er misses! Roflmfao

310

Hi everyone

as usual a lovely newsy post from you dolly.  Please let us know how your pkg results go.  And as for the dancing - your one footed friend.  has no sense of rhythymn, timing and the feet know what they should do but dont respond and that was before the parkies - so my dancing is even funnier now and as for the singing forget it!  Hope you have a lovely time.

Mmmm Pokermid I just knew i had seen your face before - in a galaxy far far  away 

where you can stay young forever and a day

but we decided to return to earth

where with our Parkies everyone gives us a wide berth.

But I dont think its Parkies that makes us odd

its coming from the land of clod

from one alien to another (ha Ha)

Eh Ecky love the photo.  It's good to be different.  Keeps em guessing is that really you?

Thinking of you all

warm regards

Astoriasis

311

Hi,

Its not the oddness,its people are unaccustomed to being around sick people.

I have a very strange and odd PD symptom,maybe PD but pretty sure from what I have read from others here

I jerk and flail my arms and do a few strange body jerks if I stop waling,sometimes haha

Im a walking prank video,lol

But I have learned not to care much because today most people are to self concerned to catch a quick jerk unless you are around them some time.Then if I feel compelled I tell them its probably a PD symptom,

If you want I have a youtube video,Parkinson jerks,come look especially fellow jerkers here,LOL

I always remember my Doctor Low telling me ,it"s what you think of yourself  that counts not what others think

What concerns me mostis the lack of professional care that I get with this condition.

Humor is our best friend for sure,haha

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I completely agree, john947.  Sometimes I start laughing at myself when I drop something for the third time or can't screw in a light bulb because I keep getting the angle wrong.  (How many pwp does it take to screw in a light bulb?)

Although I have told the story on this forum before, there are new members now, so I'm going to repeat it.  Move on to newer posts, you older members!

When I was newly diagnosed and reported for my first office visit to meet my PD specialist, I was feeling pretty depressed over having this progressive disease.  But it was that day that I was introduced to the possible humour in our situation.  The waiting room was crowded, and I looked around at all the elderly, quivering people rather sadly.  Then another shuffling patient came in and asked the receptionist what room he should go to for the exercise class.  She asked him, "Beginning or advanced?"  He said he didn't know.  The patient waiting next to me spoke up:  "It doesn't matter.  Just go on through.  They give you a test.  They knock you down, and if you can get up, you're advanced."  Everyone laughed, and I saw a new value in humour.  Most days I can still laugh at myself.

J

313

Hi now I dont jerk too much but like you I drop everything.  My husband is pertpetually saying, 'why did you do that'.  Well, he would have to have Parkies to know - it just happens!  So - we have cups on the floor, strawberries splashed around the inside of the fridge, only to mention a few of things that happen on a regular basis.  His favourite one is, 'how am I going to take you on a cruise'.  Fortunately it is all in good scouse humour and it keeps us smiling!

John I like your quote from Dr Low - he's only right!

Regards to everyone

314

 Hi all,

I'm doing the scattiest things.  I was warming up some soup on one hob and cooking some Brussels sprouts in another saucepan, waiting for the kettle to boil to add to the Brussels sprouts but I found myself pouring the water into my soup.  Of course I ruined it.  I thought it was quite funny but my husband was not too pleased.

There is no point in me picking up things from the floor because they always end up there anyway .

All the best for now.

Casie

315

Had a scary breakfast yesterday. Enjoying my grapefruit then suddenly big piece stuck in throat , could not breathe, or speak. Hubby thumped  me on back, squeezed.stomach , no good. Then I fainted , he put finger down my throat, worked ., ! Would have been gone . When recovered , as  stubborn and hungry ate porridge and lunch ok. Laugh , bit hubby finger coming round which he then poked in his eye .,!

am still here to annoy hubby. Had grapefruit today cut. In little bits and sip water now with each meal. 

We keep surviving! X

316

Oh my life Brenda ...you poor gal. That is so frightening isn't it? Thank goodness your Husband was around, it doesn't bear thinking about. How is his finger and eye now?!!!

Last time that happened to me it was a piece of potato in a curry restaurant. It was as though my throat had a plug in it, i  remember standing up and leaning forward and being thumped on the back, and crying with relief afterwards. It has always been a fear that i have had, Mr D tells me that i don't masticate enough!!!

Keep chewing thoroughly my friend !

luv Dolly x

317

Yes dolly I don't chew enough . Keep up with  hubby Peter, s fast  ester !,extra careful when out now.,,

went to a church strawberry tea that afternoon. 

Fine other wise. Having 10 weeks n h X physio , great. Hubby eye and finger healed ! 

Been to. Our caravan , wrote more poems . Helped mum who had pulled muscle , she is 89. 

Hope you and mrv dolly ok. Been too hot for me! 

Brends xx

318

For s laugh brends

starbucks  fun
We never go in Starbucks
But stopped off there today
And what a laugh we did have
Not. Safe to let us play.
2  Teas says peter gaily
With Soya milk as well
Hot or cold the girl says
Hot he says be swell.
First it's too hot to carry
Forgets the little bands
Struggles out to car with it
Good job he has big hands .
When in the car we  Spill it
Getting tea Bag out
And as for price well don't ask
Half of a. Meal no doubt .

319

How am I today?

totally. Fed up. Depressed. Miserable. Inconsolable. Why? The bbc web site for doctors states,somewhere there are no plans for anymore episodes!  The gold standard for gp practices has gone. 

When someone doesn't turn up for an appointment, they don't just become a statistic, to be sneered at, 

The doc cares. The doc drops everything and breaks into the patients house and saves them from a perp who is promptly arrested by Sgt. Rob. 

The practice cares.  Folk turn up and are seen at the drop of a hat. (Much the same as Holby). There so well looked after,there is never amy patients. Nb everybodies records  were digitised in a weekend. 

That, and it's a bank holiday for Glasgow. So the tellies still sh!t. And I've ran out of anti-depressants, so I'm depressed    Scottish prescriptions might be free, but that's only of use when you get them. Docs is shut as they were on Friday. Pharmacy is shut. As they were on Friday. And if I break in I'LL be ARRESTED. 

No doubt I'll be killed, slipping on the stairs in the shower, or being shot by a trigger happy cop ....

320

 

Oh Eck - Keep your chin up lad don't sink into oblivion! Your far to liked for that, not only that it's only television  it isn't like that in real life, they try to make it look as if they care!!

Things can't be that bad, go suck on a lemon see what that does! (chuckle)

Sheila x