Welcome to the online community, I know there will be some members that can relate to everything you have said. Parkinson's affects the whole family and from what you've said it has had a huge impact on all of you.
Have you ever spoken to a Parkinson's nurse yourself? You can reach a Parkinson's nurse via our helpline. Contact the team at 0808 800 0303 or email@example.com. They'll be able to answer your questions and concerns as well as offer some advice on how to communicate these to your husband.
You can also read our information booklet for carers and people living with Parkinson's, I understand you may not identify as a carer but it could be useful. You can download it here
We also provide a book for children who have a parent with Parkinson's, it's free and you can find out more about it here.
I hope this helps, please get in touch with us when you need us, we're here for you and everyone affected by Parkinson's.