My husband was moved to another Parkinson’s hospital before COVID. He seen the consultant twice. In came COVID and did not see the Parkinson’s nurse for around 2 years. He was in a lot of pain and I contacted the department. They said for some reason he has been missed of the list. He then seen the Parkinson’s nurse around 3 times, but has not seen a Parkinson’s nurse in about a year and the Parkinson’s consultant since COVID started
Hello Katty … I see a Parkinson’s nurse every 6 months. My Neurologist left the NHS a good while ago & the only one I’ve seen since was seen privately.
I am 71 & was diagnosed in June 2023.
Best wishes
Steve2
Hello Katty
I was told I would see a doctor {general not specialist}every six months but have just gone over 16 months since I was last seen. I keep on getting letters of postponement and a new appointment but no reason why I am being shunted along. Any time I need to discuss anything I phone the PN, but she is overstretched and doing the best she can with an increasing workload. I have resigned myself to not getting the help I need.
It seems to depend on where you live. Luckily i see my consultsnt every 6 months rain ir shine
Hi Katty
my husband has had Parkinson’s for 18yrs he sees his Parkinson’s consultant every 6mths cant remember last time he see a Parkinson’s nurse hope you get the help you need