I have not been on here for a long time. My husband had Parkinsons and was rushed into hospital late December and just went down hill after. We looked after him at home 24/7 but unfortunately he lost the battle and died on 4th May. The funeral was 3 days ago. I thought I would cope better but I’m in the mode of why get out of bed and want to be on my own.
I know this feeling will get easier and I’m determined it will but has anyone any positive advice for me please. Many thanks, Em
Dear Em,
I am so sorry for your loss.
From your posts I can see you obviously loved your husband very much and he was blessed to have you care for him in the way you did.
When you’ve been caring for a person, all your day is consumed by their needs and when they are no longer here you have
so much empty time to fill.
I would say take a day at a time, be kind to yourself, it’s very early days for you.
When you are ready you may feel like joining new groups taking up a hobby , making new friends or engaging with old ones. I know it won’t be easy
we lose confidence sometimes but I’m sure you will find the strength when the time comes.
Do you have family or friends you could share how you’re feeling? You have a whole community here , who have been here for you and will continue to be so,
you are not alone, we care.
Sending you warm hugs, love, healing and hope.
Minty
I lost my husband on 6th May. A close friend of his and mine has been wonderful being here if needed but also stepping back when needed. Together we’ve had a big sort out of the flat keeping the things that wanted to use to remember him by but removing the things that no longer needed, that help some. However what helped the most was both his GP and mine (different practises) both got bereavement counsellors to call me and arrange some chats. There is a network out there willing to help you just need to ask them for it.
Johan
Minty. I really appreciate your kind words and advice. I know I am losing my confidence. I have friends who will want me to meet up but I don’t feel ready yet. But I’m sure it will come
Johan..A good idea to start sorting and clearing…maybe with old gardening clothes and shoes 1st.
Thank you for your replies.
Hi @Rach1, thank you for your post and welcome back to the Forum. We are really sorry for your loss and are sending you and your family all our best wishes.
It’s so difficult losing someone so close to you. There is no right or wrong way to feel. We want you to know support is available and we are here to help should you need it. We have information on our website on coping with bereavement. It includes tips on looking after yourself and link to support groups which might be really useful. You can find it here: Coping with bereavement | Parkinson's UK
If you need more support, you can call our free, confidential helpline on 0808 800 0303 and speak with one of our Parkinson’s nurses who can listen to your concerns, answer your questions, offer you advice and signpost you to support that is available to you.
Please take care. You are not alone and reach out if there is anything we can do.
Parkinson’s UK Moderation Team 
Ben, thank you for the information. I will look at it now. Many thanks.
Dear Em,
I am very sorry for your loss. What you are feeling is a normal reaction, you have lost a very big part of your life. Be kind to yourself and when the time is right let others help you to face each day, week and coming months. There is no ‘quick fix’ but things will become easier.
You have loved and been loved by a special person and that is something to hang on to and remember.
I wish you well and send lots of love.
Normington xx