Yes I to agree I am on Madopar & Pramipexole my sex drive has definitely gone up. I don't mind but its my husband who has the issue. Before my life changed with this it was months before I had any interest now its everyday. So I agree with the statement made to change your Nero,
yours sounds like a moron.
Good luck and best wishes. BB xx
Just read about you writing your novels....does it work? i am getting to that stage i think where i need to find a way of how shall i put it,,,controling my urges
Totally agree i have more of a interest in sex but definitely not excessive and nothing i cant manage
Hello all
So where do I turn to , I find myself in the situation of experiencing ever stronger feelings and desires for my wife which presented us with a pleasant but frustrating (for me) event a few weeks ago, bear in mind we have not slept in the same room never mind the same bed for over five years, then it was almost as if we had been transported back 35 yrs, I had made joking but serious remarks that day about her body and her lovely face, when she smiles its like the sun coming out after a long dark night, she is so very beautiful, we have been together 33yrs then about 5 yrs ago I diagnosed with prostate cancer and the only treatment open to me was hormone implants under my skin,these had the effect of making my arms and legs as smooth as the day Iwas born and my chest, it also removed any remaining sexual thoughts and desires which had all but been eradicated bythe cocktail of drugs I was taking at that time, we eventually began sleeping in different rooms as I often had horrific night terrors and often my wife was in the line of fire and so we became friends no longer lovers we didnt make any attempt to prevent what was happening in fact it was a blessed relief as I was hypersexual and ocb to the highest degree, I began to treat my Lady as a sex object, that was a dangerous time as It was killing our marriage, the ocb was me unable to pass a model shop without buying anything from 25-45£ up to very large scale helicopters and aircraft, I even ordered some specialist choppers with on board cameras, which were stolen,by then I was spendingat least £150 a month, these implants killed off all these unwanted urges virtually overnight, untill about 6weeks back I began to notice how curvy my wife was, I just ignored the feeling but not for long,as I began to need her passionately, not suprisingly the feelings were not reciprocated , after so long my wife was simply not interested ,then that night 3wks ago everything clicked, and the desire was obvious, but unfortunately in my case, total failure and I mean total, beloved was not too dissapointed, but I was,and I cannot stop the implants which are causing my problems or I will die , so I want my wife, she is indifferent, I have desire but cannot convert it into positive results, then of course there is the Duodopa system pumping Levadopa and Carbidopa,into my system all day I only take Madopar capsules beefore bed and through the night, its a bit of a struggle at times but without Ddpa,I would be crippled, and Its Ddpa,influencing my increasingly powerful desires, whichI cant use,so I cant stop the implants or I will die and I cant stop the Ddpa or I might as well be dead,,,,,,,,,,decisions decisions
Isnt parky wonderful, its almost exquisitly cruel
Kindest Regards FED
Hi fedexlike,
Is there not any help available to you and your lovley lady not just therapy wise but also in medication form. I know a friends hubby has some special pills that do really work.
Kindest regards BB.
Hi. my family and i are going through the most horrific series of events as a result of some devastating behaviour that my dad was doing a few years ago when he was on high doses of madopar. he was suffering with gambling and punding and we have since found out hypersexuality. i am absolutely astounded that the appropriate medical risk assessments were not carried out when he was on such a dangerous drug. he was put onto a different drug regime which gave us back our "old dad" but by that point the damage had already been done while he was on madopar and he is now facing a prison sentence. i have come on here today feeling desperate and wondering how many more people have been through the same thing. this is such a taboo and hidden subject and so so difficult to raise awareness for. I see you posted this in 2013 so you may no longer be logging onto this forum anymore but I am grateful for your post. it is a very difficult time for us and i find some comfort in knowing that we are not alone in this. thank you
Hi Onestar
I am so sorry this has happened to you...go back to the beginning of this thread and the obsessive-0/compulsive thread...there is a lot of information.
Take legal advice...many patients have had an expert witness tell the court about the effects of these meds and prove the accused was effectively insane.
Phone the helpline..they may have further advice/contacts.
Most affected patients have suffered as a result of Dopamine Agonists but 7% of patients on Madopar are affected.
Fight back...the drug companies and inept neuros are responsible, not your Dad.
Love
GG
Hi,
Seriously now,what about the positives DA'S do,you ask anybody with PD on or has taken DA'S, when were their best times.Guess the answer.Deep inside they all kno
They can be harnessed,controlled,i have
Titan
I am sure you believe that is the case , Titan.
However, to control the impulses demands an insight into how the mind is being controlled by the DAs which is not the case in any of the PWP that I have known who have been affected by these drugs.
It is usually the case that a friend or relative finds out about the behaviour when extreme damage is done, such as huge debt and loss of savings have ocurred, sexual behaviour has led to relationship breakdown or police involvement etc.
The PWP usually denies that there is anything wrong, is addicted to the medication and the behaviour and fights against the drug being withdrawn.
Their horror when they survey the damage, having been weaned off the DA, is indescribable and all involved often never fully recover.
If you understand the loss of impulse control and can control the impulses then you are a rare breed. Most are unable to do this.it is, in my opinion, dangerous to urge them to believe they can.
GG
Here we go again I just lost all my intended post.
I haven't been on here for a while as I find the stories of PWP's has not changed since we started on this road back in 1980. I am just so glad that at last there is recognition of the affects of DA's on PWP's it has been a long time coming.
The dreadful situation has gone on far too long, and the terrible affect on people's lives is just appalling. GG you know how it has been for your family and how we suffered with my late husbands change in behaviour, it is certainly true that the PWP does not realise what is happening to them and think everything is normal. Life is hell for all those close to the PWP and the cost can never be fully counted, the hurt takes a long time to heal and only now eighteen months after my husbands death can I feel it subside and the good memories come back. My husband was a lovely man who suffered this disease for nearly forty years and we had a very close marriage so I always knew it wasn't him when it was difficult but that doesn't stop the hurt and constant worry of what may happen.I used to say he had lost the ability to recognise the boundaries of proper behaviour. Watching the one you love suffer is difficult in itself without all the other stuff, my husband was a brave amazing man of great strength till the end and I miss him dearly but please lets hope at last something may be done quickly to stop more people having to go through this and doctors and the PD.uk start to listen to families more and react more quickly.
Dearest Vivian
It is good to read that you are coping with the loss of your dear husband and everything in your post is so true...I will never recover fully from the terrible years of my husband's deviant behaviour caused by the DAS.
I live in dread of it recurring.
I share your wish that doctors warn PWPS about the very real danger of the behaviour being caused by these destructive drugs and that treatment is more readily available.
It breaks my heart to see new victims stumble onto the forum unaware of how and why this nightmare has engulfed them.
Your husband is at peace now..
I hope at last you can live in peace too.
Love
GG
Thank you GG yes I am so glad he is free of all the suffering, we had a service of thanks giving and wore all bright colours especially pink which he liked to wear both shirts and ties and the final hymn of you raise me up sung by Josh Groban we did a cd of all his favourite music , the Stones Jonny Cash and Buddy Holly and a dvd of his life both to be played at the refreshments after the requiem mass, I think he would have been pleased.
I wish you all the best in the future and hope you can relax a bit more soon. kind regards Vivian
My deepest regards Vivian for the loss of your husband.Sounds like you both had a wonderful marriage with many kind memories
Best regards
john
Hi Fed
I know where your coming from with your frustrations.I often get the urges but second thought feel how frustrating our performances can be ,not like the old days.
One thing i do though is relish in some good old necking and kissing.
Sort of like when we were young and didn't go all the way,LOL
Ive also turned my energies more into our political nightmare.But only a little ,nothing excessive.
Got to rely also more on finding good thoughts and deeds.
Fishing is coming soon again,welcome anytime your over here.other side of the ocean.
Best
john
Hello,
I wondered if anyone can tell me whether the symptoms described here are linked to behaviour pre PD? Sometimes my lovely man seems a bit OTT, but I didn't know him before the diagnosis, so have no comparison point! Doesn't seem as bad as some of you describe, but...forewarned is forearmed!
Thank you!
Thank you BB, I had look at the information about medications. He's on pramoxipole, seems I'll need to keep an eye on this! No gambling that I'm aware of yet but definitely a bit of furtive online behaviour. How hard is it to talk about this stuff!!Xx
