Hi, my partner was diagnosed with PD about 3 years ago. Luckily he has it fairly mildly and until recently was walking briskly a good mile or so a day. However he feels so faint these days that this has become too difficult. His BP drops are huge, worse in the mornings and worse after meals although he only eats small portions. He is on Madopar 3 times a day, and the consultant has experimented with Fludrocortisone and Midodrine but these do not help. He is now talking about injections with Octreotide and it seems like this is the last resort. Has anyone experienced this? Does anyone have any other suggestions for treating these very severe drops in BP? We have tried all the usual things, drinking more, increasing salt etc. Any suggestions very gratefully received.
Hello SPSP,
Welcome to our community forum. You’re sure to hear from our members soon regarding their experience with varying blood pressure, but in the meantime we found some information on our website that may help: Managing low blood pressure and Parkinson's | Parkinson's UK. You can of course search the site for other articles and information, including archived forum discussions on the subject. Additionally, we have a helpline that is free and confidential and staffed with highly knowledgeable advisors who are always happy to help. You can reach them on 0808 800 0303.
We hope you’ll find some answers using these resources, and we wish you a warm welcome to the forum.
Best wishes,
Jason
Forum Moderator