hi , My dad has Parkinsons and is having real bad illusinations ,to a point where he thinks his home is under attack all the time . he started on some tablets to help with his shakes but have done a lot more damage than good, he sees people all over the house and garden ,dozens at a time and he is getting worse, hes up all night in and out the house trying to defend his home . does anybody have any advice on what should be happening ,support wise because all i get is he is having to be weened off these tablets bit by bit and that’s it? i am worried he will come to some harm if this carrys on as is , any experience and advice anybody .thanx
Sorry to hear about your dad’s hallucinations, it’s understandable that you are very worried.
If you want to chat to someone about support please feel free to call our Helpline on 0808 800 0303 for advice.
There are also some tips for family and carers on our website here: https://www.parkinsons.org.uk/information-and-support/hallucinations-and-delusions-symptom
that may be useful for you.
Your Dad needs to get to contact his Neurologist or their Secretary to change the medication as I have been where your Dad is but not in such a bad way but scary all the same. I was basically telling lies about events and my wife was concerned as she would challenge me over my comments and I would snap back at her in the belief I was right in my mind which I wasn’t. Fortunately for me that is now all in the past. Hope your Dad gets sorted soon, I can imagine the nightmare you’re having with him. Keep us posted on your progress, take care, all the best.
Nice to know you can get sorted, all the best and thanx for finding time to respond👍
No problem, we are all on here to help one another and to relate our experiences that others may learn. As your Dad will discover, some medications work better than others, it is just a matter of getting on to the right one !!
hi . its nearly a year on from my first post and my dad is hallucinating again and with what I can see little help or interest from doctors or specialists , They say there is no more medication to try but has only had Parkinsons 5 years , 78 and wrote off is the feeling I get , lives near Retford , between Doncaster and Nottinghamshire and apparently no real specialist for this area of the country to deal with Parkinsons Disease, Is hallucinating a common problem ? cant seem to find much said about it , to be quite honest the whole area seems poor on any illness .
One of the Moderators, Edwina, posted above and gave you a phone number to call have you tried it ? My local Parkinsons Nurse has been very helpful, so speak to your Dad’s practice to get a contact number if you don’t have it already. With me, none of the medication helped either except Madopar which I am still on now because of this my specialist at Peterborough referred me to Addenbrookes Hospital at Cambridge for Deep Brain Stimulation. It would be worth asking about this for your Dad. Once again, keep me posted on any progress you make and if I can be of any further help don’t hesitate to get back in contact.
Further to my last post could this hallucination not be related to Parkinsons but could be the on set of Alzeimers disease ? What ever the prognosis you need to get to the bottom of it to define what it is your Dad has got.
My thoughts go out to you and your dad. Cruisecontroller has given some good advice - have you given our helpline a call? If not, I highly recommend that you give us a call as soon as possible, one of advisers can put you in touch with a Parkinson’s nurse who can offer your dad more support on this.
We also have a lot of information and advice on our website about hallucinations and delusions here - https://www.parkinsons.org.uk/information-and-support/hallucinations-and-delusions-symptom.
Lastly, I just want to reassure you that you and your family are not alone and we are here to support you in any way we can. To find local support near your dad, please use our search tool here - https://www.parkinsons.org.uk/information-and-support/our-support-services