Hi Cas, I know exactly what you are going through. I have been caring for both my mum and dad. Mum has advanced PD and is now bed bound and dad sadly passed away from prostate cancer in March. I too feel overwhelmed and don't feel cut out for the immense care needs of caring for someone with end stage Parkinson's but I promised dad I would look after her and he passed away safe in the know,edge mum would be looked after by her family. I too have young children. However I do have a strong network around me, my partner has always been a full time dad and I have now taken a career break to care for mum. She lives across the road from me now so makes things easier.
If you end up looking after your mum you are going to need help and support from people around you, family, friends and extra support services. I have fought for CHC and have 4 care calls a day from a wonderful local care company and 3 night sits a week, which I know I could not do without. However it is not easy to get.
My mum is at a late stage , she is on full medications Madopar 8 to 9 times a day, Ronitogine patch, neuro patch, quietopine and Clonazepam as well as other meds, all through a PEG. The Ronitogine patch has recently been reduced as mum was getting hallucinations - she was on 6 mg a day and they have reduced it to 4 mg. she is at the stage now where the meds are causing more side effects tha helping and all they can suggest is slow reduction trying to balance side effects with PD symptoms - it seems to have been this way since she was diagnosed - a constant battle between side effects and PD symptoms - constantly changing dosages, etc. My only advice is see how she goes 2 mg is a low dose and access again with the PD nurse.