I wonder if anyone was having similar problems to me.
I was told, my NHS Consultant would see me every six months with a Parkinsons nurse in between times.I was diagnosed in March 2016 when I saw my Consultant and spent the first month increasing my dose of Madopar. I began to have severe involuntary movements in my foot and because I have a disc bulge in my spine I now find myself in severe pain and unable to walk more than about 20 steps on a good day, before I am bent over in pain.
I have tried to contact my PD nurse with no success, leaving messages on her answer phone. I contacted my Consultant's secretary and I did get an immediate reply telling me to halve the dose of Madopar and my GP would be contacted by week ending 23rd July. Nothing has happened since. My GP has received no direction and will not get involved in my treatment.
Also as my GP has referred me to a pain clinic for my back, she won't take further action such as requesting an x-ray or any other form of treatment. I have been informed that there is an 8 week waiting list for a first appointment at the pain clinic.
I am also worried that I may now have permanent damage with my foot turning in and numbness in my toes and part of my foot.
Can anyone advise me as to how to proceed? Feeling stuck.