Hello everyone. I'm a 55 year old mother of three lovely ( grown up) boys and I currently live in France with my husband who is working out here temporarily. All three of our boys are living and working/ studying I. The UK.
I was diagnosed with Parkinson's two years ago, having being referred to a Neurologist by my GP because of a tremor in my right hand. I had all the usual checks and a 'DAT' scan . The scan at that time was not particularly conclusive though my Neuro stated that he was still sure I had the disease as I had no right arm swing, and 'gait' problems. I was very shocked by the diagnosis and like many of you out there have found it really hard to accept, and believe!!
Up until two months ago I have refused all medication, but more recently I developed a 'bouncy' right toe and foot, and bizarrely have felt very 'jelly like' internally so I'm now on my second month of 'Azilect' , I feel better internally but my tremors have not improved significantly. I saw Neuro again last week and he's now added 'Requip' into the prescription - this scares me, and although I've collected the script I haven't yet started it. I'm hating the idea of taking all these meds. The trouble for me is, although my Neuro speaks English, I feel it's not really good enough English for him to fully understand me, when I try to explain my anxieties.
Basically, I'm really scared about the future, I'm still really struggling with acceptance, and I feel very alone with it all. I do speak reasonable French, but my understanding is poor! My husband is really supportive, but the nature if his job means that he is rarely here. He is trying to get us re located back to the UK.
I'm hoping that we will soon be back in the UK as I could really do with being a member of a local support group or similar.