I dont know what blood tests were done but apparently they were normal and the MRI on my brain was normal too, so now the neuro thinks its psychogenic but Im sure its not =( so Ill probably wait for ages to see him again and he will just discharge me, thats what usually happens. I really hope you have more luck and get some answers x
Hi suzy
I'd take a guess and say at least one blood test was for 'wilsons disease' another step along on the journey..
Your brave too say your neuro says it's 'pyschogenic'.
But one thing strikes me, You've been saying all the way through about how your symptoms affect you.
Is that 'pyschogenic' ??, I dont think so.
I think a 'datscan' would answer it, it's the next step,for you and so many other's stuck at the same point, if it isn't PD then it is something.
it's a little unfair the amount of time people wait for it.
Thanks Sea angler, yeah Im going to try and pluck up the courage to ask for a DAT scan when I see him in february. When I had the blood tests a while back I did see he had written on the sheet to test for copper so I assume that would be the Wilsons test. I know emotions etc can aggrevate my symptoms eg stress making the tremor worse but Im sure theres a physical underlying cause, I have a tremor whether Im happy or sad and can seize up whatever my mood so psychogenic doesnt make sense!
I have a obvious tremor in my hands but i do some days feel the internal tremor where it fels like my entire body is shaking on the inside a very strange feeling indeed
Yea Shelly it is a really strange feeling because I get it at times! The shakes in my left hand gets worse as the weather gets colder as well! Brrr dreading the winter!!
Have you got sorted out Shelly now with all your entitlements?
Regards Sheffy x
I get it too in my right side - very strange feeling . I find it irritating . Agree with you about the weather Sheffy .My hand goes very cold and numb with the cold weather . I seem to feel the cold a lot . My husband says our house is like a sauna !
Hi Suzynola7.
I too have hand and wrist spasms which are excruciating and contort my wrist for a few seconds/minutes. No idea what to do about them but I sympathise. I've had PD diagnosed 2012.
Best wishes to you
I don't feel like my PD is under control. I'm 56 and working part time.I talk less as I feel drunk and my voice is weak. My body and joints are SO stiff I can't reach my toes.I have internal tremors and don't feel in control of pain. My bladder is weak. I need to go now not in a minute ! My joints are VERY painful. Especially hips and wrists.I'm taking Madopar 125 mg 3 hourly with top ups of dispersible madopar for quick fixes and daily Neupro patch which by evening makes me feel spaced out. I'm tired to the point of exhaustion and see my neurologist 4 monthly at present. PD nurse is a disappointment. I call her but she takes ages to reply. when she does she's knowledegable but doesn't call to see how I am after a few days /weeks/months.
Anyone else feel like this?
Hi to the three of you
Flo ; Go back to your Dr's and INSIST on a DAT SCAN this is the only scanner that can detect PD and you can push to be referred for one if your GP is unwilling change your Dr or ask for a second opion.
Suzynola7
You are scared I understand but you must have a Dat scan as well ( did they do one on the 22nd?) some times you really have to push to get the answer even when is staring them in the face
Trelawney
Yes PD can cause a inner tremor and it is a very uncomfy sensation I have pain in my hip and legs all due to my PD I am on Madopar 62.5 MG x 6 tab's per day. Your PD nurse does not sound much cop I would suggest you ring this Website help line number they will call you back.
Let me know how you all get on xx BB.
Thank you BettyBlue. I'll call the helpline. You've shown a greater response than my PD nurse. Sorry to hear you too get pain. I get comfort knowing I'm not on my own in this condition.
I will help in any way I can that's a promise.
BB x
yes, i have internal tremors on the left of my body, the symptoms progress very fast. At first you only fill like some thing pulling internal your muscles, and the frequency increasingly faster and you endue ache. I try LSVT big exercises, the tremors slow down, but i got shuffling on walking, and can not walk very long. I also filled unbalance and dizziness. The symptoms stared on the other half of my body in which the muscles got stiffness. I have diagnosis with PD two years ago.
Inner tremor , I have that all the time but I am on Sinemet which is supposed to control all the shakes.
I take 3 pills a day 62.5mg.
I have been told to double dose the morning pill if I want but I dont want to , has anyone else done this ?
Cheers
Nick
hi nick i am on madapor 62.5 x 6 per day and pamipexole 0.7mg x 6 per day in all probability about to go up on sat to 8 of each per day i recognise a off state now so it is needed.
bb x
Hi BB
So shakes is off n none is on ?
I had a terrible time just recently ie Thursday last week , we flew to Rome and I was completely floored the next day , ok i'de had a few but not enough to knock me sideways all the following day n night, Strange thing is we flew home Sunday and I had the same symptoms on Monday morning but not as bad , although i didn't drink a lot of beer on the evening Sunday.4 pints
So do Parky pills effect you when flying ie the day after ?
Cheers Nick
Hi Nick Parkey pills get cancelled out by to much booze when i was first dx i went on holiday to Rhodes just 2 or 3 glasses of wine per day after a week i started to be unable to put a fork into my food and as we eat out ever night on holiday i was very self conscious i would not ask my husband to cut it up or the chef either so i started selecting food i could scope rather than fork.
When we came home i was adamant no booze for two weeks and my hand strength returned to normal.
I used to be a big drinker 1/2 a bottle of dark rum in 1 evening out.
So shakes is off n none is on ? yes
So do Parkey pills effect you when flying ie the day after ? not that i know off.
BB x
This is really interesting to me - I shall be flying in September for the first time since my diagnosis in February. I used to be a terrified flyer, now I don't care but interesting to learn that it shouldn't upset me. i have internal tremors (mainly in my head and chest). As it's still early days for medication for me, I hope these will ease in time. Fingers crossed!
Hi BB / Doglover
I spoke to my Parkys nurse about my symptoms in Rome ,
Interestingly the pills and flying can lower your blood pressure couple that with Ale n heat could be a recipe for a washout the next day 
We are off to Lake Garda in August so I'm driving 
Hi Nickthemod
I am in awe that you are going to do the driving - good luck and have a fabulous holiday!
Wouldn't things be easier if we knew how we were going to feel day by day - hour by hour!
Keep well
Cheers
However it may prove a little more troublesome than originally anticipated as I have now ruptured my left arm bicep tendon lifting something way to heavy on the 22nd of June.
rupture on the left of me parkys to the right here I am stuck in the middle with me !
Oh well everyday it gets easier and my drugs are working better now.
Keep going everybody everyday is a new adventure