LOve your Vlogs ... interetsed to know how long u have had Parinsons and when u had DBS ... and if u think it has made a major contribution to your functioning ?
I am on LEVODOPa (125x6) plus DAgs(16mg) .. treid MAOB inhibitor SELEGELINE with little effect (so stopped it) ... and recently put on MCOMT inhibitor OPICAPONE . This latter drug is new and has increased my ON time by 2 hours and it is better ON time... !
I report back to my NEURO (after 2 mths of drug) soon and i have a dilemna in that i would like to have DBS sometime because it seems to make such an improvemnt for the people who talk about it online but i fear if i am too enthusaistic about OPICAPONE he wont consider DBS for me . I get the impression from your vlogs that u r not happy to just get OK palliative care but are seeking to get the best treatment u can. So likewise i have been really pleased with OPICAPONE but get the impression that DBS is in another league. Maybe its a sort of greedy thing but i w'quite' to give myself the best chances not just getting by ... then given that DBS exists (and APO PUMPs or DUODOPA for that matter) and if they are the quantum leaps that people seem to report then i want to be considered for them too. I reckon if i say i am alright (ie: 'quite' good) my neuro will forget about me ! Thye see so many people that you have to be in a bad way to get attention so if u r doing ok but aiming to do well the system will ignore u unless u make a lot of noise ! ... xAndy(aka Ojalahey)