Introducing myself


#1

Hi all,

My name is Hans. Allow me to introduce myself. I'm dutch, male and currently 57 years old, married and father of a son (23). Diagnosed precisely one year ago but living with most of the symptoms for several years. I still work full time in chemical research. I'm not on drugs (yet), as I feel I should try other approaches first. These include several types of exercise, meditation, experimenting with diet, supplements (UDCA a.o) and acupuncture. My first symptoms were increasing stiffness and rigidity not withstanding all the yoga and stretching I did. My left hip was replaced 6 years ago, I believe it triggered dormant PD.Several therapists looked at my symptoms and blamed  the hip resurfacing, leg lenght difference, lower back and whatnot. My left shoulder has been weaker and stiffer than my right for years. two years ago the left arm strated to tremble, weakness and stiffness were so apparent that I went for consultations with orthopedists, therapists etc. It took two years and 3 neurologists and two scans to a final PD diagnose.   Nowadays the hand rigidity, clumsyness and tremor in my left arm are the most troubling symptoms. Stiff lower back muscles, toe cramping and sometimes awkward robotic gait I can deal with. Sometimes troubled speech. The left hand stifness and shoulder weakness makes playing flute and guitar almost impossible.

Love to speak to you about anything. Found this forum via the US forum, by the way.


#2

Welkom aan boord van Hans.

I think you are right by taking plenty of exercise, keeping a healthy diet and also staying in work. The medication is always going to be there when you need it, if you need it.

Good luck with your regime big grin


#3

Hi im martin, I'm new to the forum so not sure if this is the right place to talk about my problem but here goes ive been diagnosed  7 years ago and have last year moved from Bournemouth to live with family in essex. Where as im very greatful to them the house is not suitable  for my needs,  I hAve to climb  two flighs of stairs which  are difficult among  other problems. I still have no specialist or parkinson nurse. What I want to ask do you think I qualify  for rehousing.  


#4

Hello Martinfish,

Welcome to the forum. I am sure you will get plenty of support from the other forum users here.

I did want to tell you about the different types of support Parkinson's UK can give you. We have the helpline, local groups, information and support workers and all sorts of publications for you to read. You can find information about it here: http://www.parkinsons.org.uk/content/support-you.

Our (free) helpline is open on Monday-Friday 9am-7pm and on Saturday 10am-2pm. The advisers will be able to give you advice and information about all aspects of living with Parkinson's.

I hope this helps.

Best wishes,

Ilona

Moderation Team.

 


#5

 

I'm not sure Martinfish, and I can't understand why you have not been allocated a neurologist. Perhaps the first thing to do is contact your GP for a referral to a neuro then that will start the ball rolling by getting a diagnosis if its needed, you don't say if you are on medication either, this will help in your plight towards any help you need to apply for as far as I know. The other option is to phone the helpline 0808 800 0303 and ask for advice.

Regards Sheffy  

P.S. think the moderation team beat me to it!


#6

Hi sheffy i probably didnt explain myself very well, I have been diagnosed  7 years ago and I am on medication and had a specilist  while in Bournemouth  but my doctor has only  just decided to  sort one for me in essex        martin


#7

 

That's good Martinfish, hope you find a solution to your problem

Regards Sheffy


#8

hi haans and martin,

welcome to the PD club i realise no one would chose to join this club including me but welcome no the less.

 

I hope you both get what you need from this forum any questions you have just ask.

 

regards bb xx


#9

hi hans

levodopa works. nothing (other than dbs and to some extent dopamine agonists) else does. 

 

cheers


#10

Hans

if you can focus more on your guitar and flute when meditating this may help also.

Beware side effect of yodelling.