I would like to introduce myself. I was diagnosed nearly 2 years ago in my mid 30s. For quite a long time before I had had difficulty writing & my (already small) writing got smaller but hadn't thought anything of it.
My hand started shaking in Dec 2012. I knew that wasn't normal. I went to my GP who referred me to a neurologist. It took until Oct that year to see the right specialist who diagnosed me straight away. During those months pre-diagnosis I started feeling extremely tired & just did not have my normal energy levels. I had all sorts of blood tests & scans. By the time I saw my consultant I just thought she was going to ask more questions, and say I needed more tests. What I wanted was someone to say 'This is what is wrong and this is how we will treat it.' It was the last thing I thought would actually happen. Parkinson's Disease had never crossed my mind-I thought I was too young. I had the biggest shock but it was also a relief because at last there was an explanation. I started on Rasagiline and Ropinerole not long after.
I am so very lucky to have a brilliant specialist nurse. I also have very supportive family & friends and work have also been supportive. Yet I have still found it (and still do) so hard at times. It took me a year before I could say I was anywhere near truly accepting it or getting my head round it. There is always something new to get to grips with. For me recently, it is accepting that I need help, and accepting my limitations. I am learning to choose what to spend my energy on and when some things are really important I can push myself & it is worth it even though I feel exhausted afterwards. I try to plan accordingly so I have time to rest. I cut my hours at work down to 4 days a week which really helps. I have good days and bad days,like everyone I guess.
Sorry for the long intro.
Any advice/experience on acceptance/learning to live with it would be welcome. Also any advice/experience from others who are working.
Thanks for reading!