Hi. I’m Tony. I’ve never posted here before so not sure how this works. I’m 75 and for about 5 years was troubled by increasing mental slowness and muscle weakness which I put down to aging. Also frightening dreams - would flail about and shout. When a hand tremor started 18 months ago I went to the GP who was sure it was PD but told me she could not diagnose or treat without a referral to a specialist for which there was a wait of ‘at least a year’! I saw the same specialist privately which took 3 weeks. He diagnosed PD and started me on Madopar. This helped reduce the tremor and stiffness but not the dreams (RSBD) or mental slowness which has got worse. And I’ve experienced a lot of odd symptoms since which I expect may be related. I’m sure others have experienced and expressed this before, but having worked in the nhs I’m hugely disappointed at the long waits people face for diagnosis, and the lack of support until the next annual consultant appt. I suppose that just reflects current reality of nhs pressures. I did write to my MP who was sympathetic but can’t do much…
Hi, @Tony11. Welcome to the forum - I’m really glad you’ve found your way here. Thank you for sharing your story so openly, especially as this is your first post.
I’m sure that what you describe will sadly feel very familiar to many people here.
The dreams and nighttime movements you mention, along with mental slowness and other changes, are things others in the community may recognise. If it’s helpful, we have information on our website about sleep problems and Parkinson’s which may prove helpful.
If you’d like to talk things through one-to-one, our trained experts and specialist nurses are here to listen and can offer information and emotional support, including around symptoms, medication, and navigating care. You can call them for free on 0808 800 0303.
You’re not alone in this, and you’ve taken a really positive step by posting. We hope this community feels like a supportive place to ask questions, share experiences, or just have a bit of a vent when you need to.
All the best! 
Parkinson’s UK Moderation Team