Hello friends I have been living with pd for 20 years being diagnosed when I was 53. I am married to a wonderful lady who has looked after me but we are finding it increasingly difficult coping with the disease. I have been on many meds over the years my current regime is stale or,pramipexole & amantadie,howver I added apomorphine to my drugs in June 2019. I would be very interested. In anyone using similar regime.also does anyone have experience of using gabipenton for treating pain.look forward to your replies
Hi @chodla and welcome to the forums!
I’m sure we’ll have other members that are on similar treatments to yourself and will be able to share their experiences. If you’ve not already done so do also check out our Drug Treatments page on the Parkinson’s UK website.
We also have Nurse Advisers on our Helpline who can give specialist information and advice on treatments. You can call the helpine on: 0808 800 0303 or email: [email protected]
You can also access our Local Adviser service through the helpline, your local adviser will be able to discuss the difficulties you and your wife are experiencing and help identify local support for you both.
Warm regards,
David
Forum Moderation Team
@chodla welcome to the forum, I hope you find the information and support from members helpful. PUK has lots of information and support and also a helpline which I have very useful.
I am not qualified to give any medical advice and my parky meds are different. However you also asked about Gabapentin, due to living in constant pain since 1985 (there is an article on the PUK magazine https://www.parkinsons.org.uk/information-and-support/your-magazine/stories/living-pain-and-parkinsons) where I talk about this.
Anyway in my honest opinion Gabapentin as part of my pain management regime was a game changer. Again in my honest opinion, I find it helps me to live with an acceptable level of pain. However if you have some doubts and that could be after reading the leaflet that comes with it, I suggest that you speak with your GP who should be able to explain how it works and more importantly why they have suggested this to you as part of your pain management plan.
Best wishes John😎
Welcome to the community dude. Enjoy your best time here.