Hi all,
Nee here. This is my second post. My first was a query about dementia.
I’m a 47 year old male. My dad is 78 and was diagnosed with PD just under 2 years ago. By the time he got diagnosed he was quite advanced and the onset was aggressive.
It’s hit him quite hard as he was a builder all his life and very fit. He initially struggled to come to terms with it but is generally ok other than getting annoyed with things he can’t do.
It’s been trial and error with medication but he’s currently in a good place.
We’re getting the results of an assessment for dementia in a few days as some of his recent symptoms have been quite intense (hallucinations, waking up in the middle of the night to go to work, confusion of people and places etc).
Been doing lots of reading about PD and associated cognitive issues. It’s very good to understand the issue and know where I can help, but it’s also really upsetting.
Joined here in the hope of gaining knowledge and to perhaps offer a kind word. I know having PD can be brutal and how difficult it can be having a parent with it and see how it impacts them in many ways.
I feel very guilty getting upset about it as I haven’t got PD. What I want to do is help as much as I can and l (without sounding selfish) live my life to the fullest as that is what my dad tells me to do.
