Was diagnosed earlier this year at 47. Symptoms are mostly shoulder issues, some tremor, stiffness and insomnia.
I’ve not started any meds as yet.
I’ve noticed my arms jerking out on their own, usually when I’m very relaxed. It’s like the sudden jerk you get as you are nodding off but it’s always my right arm flailing out and that’s the Parkinson’s side. I’ve read it can be caused by long term use of Parkinson’s meds, but I’ve not started any yet.
Has anyone not on meds, or not long on meds, experienced this?
Sorry to hear about your Parkinsons. You shouldn’t experience involuntary movement ( dyskinesia ) unless you was on medicine such as Madopar.
You should try speaking to a Parkinsons nurse and find out what kind of movements you have & why have you been experiencing this considering you’re are not on any Parkinsons medicine.
If you call our free Helpline, they’ll be very happy to advise you on this issue, and any other Parkinson’s related concerns you may have. You can reach them on 0207 963 9371 or email us at [email protected] Monday-Friday 9am-7pm and Saturday: 10am-2pm.
I was diagosed about 2 years ago. My meds include Madapar 100 mcg 4 times a day and 6mgs of ropirinole at 6pm daily. I had sudden jerky movements before taking the meds, and still have them usually when relaxing. Quite often I have a glass or cup in my hand. I needn’t say more.
I resisted meds until I could carry on no longer. My consultant said my symptoms would improve with Madopar 100/25. They did and I regret to this day not having accepted them earlier.