He is feeling very cold and pain in head was in the ear, most of the time is this part of the disease ? my husband has had Parkinson’s for about 3 years I am trying to understand what happens as he goes through the year he gets very tired and exhausted I have got him to start Tai-chi he has been on 1 session so I hoping he will go on more, as a wife I feel useless I want to help him so much.
With only one appointment with the P nurse not till December and don’t know when the Consultants appointment is normally once a year is there anyone who can give me some guidance or help please sorry to go on but this forum seems to be my best chance thank you all in advance.
Based on the information you’ve shared, it sounds like your husband has been experiencing fatigue which is a common symptom of Parkinson’s. We have more information on this on our website including tips on how to avoid fatigue or help minimising, here - https://www.parkinsons.org.uk/information-and-support/fatigue
Lastly, I’m sure you’ll hear from the forum community soon, however, if you’d like to speak to someone about this, you can always give our confidential helpline a call and speak to one of our friendly advisers. Feel free to give us a call on 0808 800 0303 from Monday-Friday: 9am-7pm, Saturday: 10am-2pm. One of our advisers can also arrange for our on call Parkinson’s nurse to give you or your husband a call within 24 hours.
I contacted the Parkinson’s Helpline late morning regarding my husband and by 4pm a PD Nurse phoned him and advised him to see his Doctor , what a fantastic quick response thank you.
Hi,I had an episode today of feeling really unwell,started with my head spinning,uncontrollable tremor inside and out, head nodding and shaking. Lasted about an hour,then the shaking stopped but still do not feel right. Is this normal.
I hope you’re feeling OK at the moment. Have you spoken with your GP or Parkinson’s specialist about what you experienced recently? It’s always a good idea to have a chat with a professional if your worried about any symptoms like this. We do also have some information on Dyskinesia that you might find helpful, you can read more here: https://www.parkinsons.org.uk/information-and-support/wearing-and-dyskinesia
Reah has mentioned in her comment above how to contact the helpline, you can have a chat with one of our advisers on 0808 800 0303 from Monday-Friday: 9am-7pm, Saturday: 10am-2pm. They can also arrange for a Parkinson’s nurse to give you a call, if you’d like to do that.
