Just been diagnosed

I’ve just been diagnosed with PD. Not a great surprise and, in an odd way there’s a strange sense of relief that I know what I have and that it’s not motor neuron disease.

First experienced problems in March with a rotating right thumb, & very stiff legs. Have not seen the thumb movement again but there’s a dull stiffness in the legs. There’s a noticeable weakness in the right hand and I tend to shuffle when walking. Also, get tiered very easily.

Joined a gym in May and go three evenings a week - this really helps. Though I still find bodyweight exercises a ‘challenge’.

Begin medication (levdopa) in two weeks and will attend my local support group next month.

Is there anything else I should be doing?

Michael.

Hello Michael,
My heart goes out to you during this time, and it’s understandable to feel as if you should be doing more. We do have a guide to Living With Parkinson’s on our website which contains information about symptoms, treatments and living with Parkinson’s. It includes information on everything from work, driving, diet and exercise to emotional issues and relationships. You can find that here - Living with Parkinson's | Parkinson's UK

We also have a ‘newly diagnosed’ section on our website with a vast range of information that will be helpful to you. You can find this information here - Newly diagnosed with Parkinson's | Parkinson's UK.

Our helpline and Parkinson’s local advisers are here to answer any questions you have about your recent diagnosis and life with Parkinson’s. Do give us a call on 0808 800 0303 or email us at [email protected].

I hope you find this information helpful.

Best wishes,
Olivia