So sorry to hear you’ve been turned down for the class. It really pisses me off that they make these ridiculous rules… whilst you may not benefit from slowing the progression you would almost certainly benefit from the support, camaraderie and specific exercises. Is this an NHS run course or private? Don’t give up, there will be something somewhere else out there. I go to a private one in Leeds and it was £150 for 10 weeks which might be a bit pricey but maybe doable?. There’s a man on the course who was diagnosed about 10 years ago but he’s still doing it and noticing improvement in his movement. I hope you find something soon. Have you looked on Facebook to see if there are any pd groups in your area? What about Nordic walking? A lot of places do taster sessions so could be an option.
Is there any voluntary work you could do with a local group that might get you out now and again. Try PUK.
I’m really lucky that I’m still working (off sick at the minute) so still able to afford some things. I know what you mean about those people who say just ring if you need anything… as if we’re ever going to ring them.
Hi Jayne,
Thank you so much for your reply…part of upset was thought slowing progression down with exercise was still an option at 10yrs but apparently not , have to start within first few years.
Anyway, it is as it is and no one can change it so we just get on with it.
There are a few classes for pd like balance and posture that I can go to. I am also going to join another areas pd support group as they have’ younger members’. I am 56 but not quite ready for the world of bingo and bowling. Not knocking it but just not for me.
Anyway, got a few classes lined up and starting tomorrow with one, and another next weds. PD support group monthly meet in adjoining area also next week, social calender a bit busier so feel better already.
I have made some good forum pals but seem to be so far away, Portsmouth, London, Southeners, I live Chesterfield area.
I am sure things will improve just in last few years lost job, partner dumped me and moved back to Chesterfield area. PD not helped getting baack on my feet, but onwards and upwards, eh?
I keep repeating the problem when really I need to work on the solution.
These new pd classes will help I am sure.
Thanks again for taking the time to reply I really appreciated the boost. I do think it helps to get it off your chest, get things into perpective.
You’re welcome and so glad that within the space of an hour you’re back on it and getting things sorted.
How do they know whether or not it slows the progression if you start later… No two people are the same and just because someone’s newly diagnosed doesn’t mean they’ve not had it for years…anyway you’re sorted with something else now. I’d also found you a class on a Monday night at https://www.mooremovement.co.uk/events/index… there i go organising again haha… don’t know if it’s anywhere near you or any good.
I’m going to join a support group in another area as well as I think same, I need to be with younger people. If you can meet people through these groups and classes, not feeling isolated will make a big difference…your diary will definitely be filling up too… you might even meet a new man
Hope you enjoy the class tomorrow, bet you can’t wait xx
Ladies apparently there is a working age group that all meet up at the end of the month. …I would love to go too but not on my own …it’s in Sale in Manchester xx
Had a return call from physio dept , with info for other classes and a bit of encouragement too. Was planning to go to another area pd support group and they did not have a Jan meeting so have been waiting for this hot date😀
Temporary set back , cup of coffee internet search back on it. Xxxx
Also just seen Divine 1 Reply missed that earlier, so thanks to both.
Xx
Just catching up with posts. Teehee, im so disappointed for you regarding pd warrior. I didn’t know there was a cutoff point. Surely if your up for it you should be able to at least start the class and then see how you get on?
Anyway reading your further posts i can see you’re back up and ready to get out there! Go girl!
Jayne, you’re a mine of information already! Good for you.
I think if you are very fit may be able to pursuade them not in the very fit category. Also apparently benefits in slowing down progression are evidenced in first 3 years. Not to say exercise is not beneficial to stay mobile help co ordination and cognition.
But the science behind exercise is very new, I am sure I will save a few cells but to be far spaces are limited not my pd area so understand. just got hopes up for best way to improve. Will copy you tube exercises at home and whilst will keep up stretching , posture exercises need to increase muscle and body strength. A fitness club near me I have just discovered has disabled access which means they accept less than ‘perfection’ and they wont all be in tight lycra looking like models ! I have just rung them and explained I am Ms jelly belly, and a bit ‘scared’ the woman I spoke to offerred me a free day pass to try out the facillities. A swim for sure and a peek around the corner into the gym area.
I am going tomorrow if swimsuit still fits as have no time to knit one . If not monday as weekend a bit busy.
Spent too much time moaning and not doing, up and down like a yo yo, inspired by you and Jayne getting going on pd warrior course. Keep on going gals !
Beeston too far away, but thankyou for the link. Just replied to divine 1 have found a private club with disabled facilities which is reassuring that membership not aimed at Baywatch lookalikes
I don’t really know the area and wasn’t sure whether you were in Derby or chesterfield, not that I’d know the difference
Private club sounds good, will you get advice on what equipment does what? I rang puregym the other day and asked if any of their personal trainers were clued up on PD, he said they would be happy to learn and work with me on balance and other stuff that I’ll need.
I can’t believe you don’t have a cozzie knitted already, weren’t you ever in the girl guides? Haha
Xx
Last message my bum is now welded to the chair. I will keep to pd classes for posture and balance and support group.
I love swimming so that will help with stamina and build a fe w muscles, tone up. Relaxing too, co ordination and can do a few stretches etc in the shallow end. They have personal trainers to work out a ‘routine’ and seem keen to advise, not sure of their knowledge but can get some gym weights stuff from the internet.
Get me Ms Motivated, I am sure this will get me back into socialising, had bronchitis last year, then a virus and so on and got a bit out of regular exercise. A bit of lazy girl syndrome too but thats the past…
Did look at a female only gym and was keen but no swimming pool did a trial but was on a circuit system and each station timed, strange idea and did not work for me.
There is more than you think out there, when you start looking.
Teehee, that sounds great. Who knows who you could meet at the gym?? Im not a swimmer and ive lost a lot of weight so a knitted cozi would fall off me. Not a pretty sight
Hi TeeHee
I have been looking into PD Warrior and the thinking is that it will be too intense for me (at 82 and with chronic arthritis already). However I looked further and found that the Hallamshire physiotherapy clinic in Sheffield is starting to run PD Warrior and are planning to hold classes in Chesterfield. I spoke to Karen Hodgson, one of their Directors and she couldn’t have been more helpful, and encouraging. I am sure it would be well worth your while to make contact with them.
I am trying to do some of the PD warrior exercises as I think they will help. I know I was only diagnosed last month but the neurologist thinks I have had PD for 5-7 years.
I think it is important to take control of your own situation. It is your body after all. I started on medication straight away - I want to get as much help as is available. So far I have had no adverse reactions.
Good luck and keep in touch with the Forum - I have already seen many useful tips.
Knine.
You are very kind and thoughtful, I really appreciate your reply. I was turned down by Hallamshire physio dept. For pd warrior.
I have had time to consider this and intend to improve my fitness and emotional wellbeing.
I think on reflection part of the decision to turn me down was my current situation. I am easily wounded and am building my confidence levels and ability to adhere to the programme was challenged.
I love hallamshire and have recently returned to them. I found he care lacking in chesterfield and my health deteriorated, I needed support changing area after a relationship breakdown and loss of employment and found none.
I aim to improve my fitness etc and really hope I can show I can be worthy of a place on pd warrior .
I really hope you are doing well knine , I have enjoyed reading your posts.
I am a self confessed whimp of late and every message gives me a boost.
Onwards and upwards xxx
Divine one,
Pleased my comment made you laff! As weight gain or loss a serious issue with these meds. Equally problematic and I hope you get your apetite back soon.
Mucho lovo, xx
but to be far spaces are limited not my pd area so understand. just got hopes up for best way to improve. Will copy you tube exercises at home and whilst will keep up stretching , posture exercises need to increase muscle and body strength. A fitness club near me I have just discovered has disabled access which means they accept less than ‘perfection’ and they wont all be in tight lycra looking like models ! 
I have just rung them and explained I am Ms jelly belly, and a bit ‘scared’ the woman I spoke to offerred me a free day pass to try out the facillities. A swim for sure and a peek around the corner into the gym area.
. If not monday as weekend a bit busy.