Agree with DIVINE 1 add B12 though for energy , take care
Hi Anne
Im keith 51 yrs young and im no saint im just me so welcome to the club
Im new to parkinsons to since Nov 2017, i have a diffrent out look on my parkinsons
I will not let it change me , i admit i do things a bit diffrently and slower but the worst thing is to let it get you down
Ive had some really piss awfull days ( pardon my french ) in the beginning and put my family through hell like you wouldnt believe
My wife and kids would walk around on egg shells,
It was harder for them than me
But my family supported me even after some of the things i said out of anger
I wont say what i said , im ashamed of it but it was anger i was unable to control till i come to terms with my condition, it isnt going away so now i make best of what i can still do
I have Pd but it doesnt have me,
I told everyone i knew and yes i lost a few of what i thought were friends
They acted like i was contagious , even talking on the phone i could tell they didnt want to talk
But i found out who my real friends were, they stood by me , never pitied me ( i hate pity ) even took the mickey but they know thats what like i wanted to be treated normally ,
YES its not an easy path but its only as hard as you make it
Always remember you are not alone ,HERE you have thousands of friends , friends you will never meet but are here just the same
Never feel alone , i dont sleep at night so if you want to chat at 3am in the morning im always on here
I cant make your condition better but i can and will make you laugh
Dont let the bugger get you down
Take care
God bless
Keith
Oh Keith I think I love you.!!! I am the female version of you. Except I am 69. Diagnosed a year ago but I think I have had pd about 4years. Tremors, feeling drunk all the time.i hate this shitty conditionâŚI want some of your positivity xxx Rosie xx
Hi Rosie
Believe me i had some real shitty days at the start
But i wake up every morning and think myself lucky
Remember JUST BE YOU . You are your own strengh and your own enemy. Fight the pd not yourself. I can laugh with my friends about my condition ( right or wrong i dont know ) but for me it helps. It makes others more at ease and they see through my condition and see only me
If things take longer so be it whats the rush
My advice isnt a one fit suits all solution
You pick out the best bits
No advice is ever 100% right.
Keep active . Be you.
I have lost a few of what i thought were friends. But have gained more friends than i ever thought with a special bond
I may never get to meet them but i know they are only a message away
I said to my son. This isnt going away so i
will make the best of a bad situration
One day we may meet
Till then take care
God bless
Keith
Id rather than
I will never be a saint and i wont even try
make peple laugh.
So be a
Hi all
Just catching up with the posts.
ItsmyâŚi admire your outlook .i donât have any anger issues myself, although Iâm still actively working, im building a exercise and yoga program to help with the balance & gait problem.
Although i am finding PD frustrating, i hope to remain positive in myself and my belief that i will not beaten.
Should I feel a need for a little inspiration i know that in the short time that I have been on this forum i will have the support of you peeps i may never meet .
Will try the supplements also.
limpleg
Thank you for your lovely reply Keith. Keep on fighting xx
Just catching up with the forum - I posted in November about sore legs but it didnât seem to be a cm,on symptom. I am now on a âmagicalâ drug Siminet which I take before getting out of bed in the morning and makes my legs work.
Would agree with others that Parkinsns specialist nurses are wonderful if you a re lucky enough to have one in your area. Best person to talk to during âdown daysâ
Agree yoga is great - Balance not always the best but itâs good to try. Re gait my yoga teacher has said to try âleading with the heartâ which sounds strange but works
Id love to try yoga
but dont know why but im not as flexible as i remember lol
also i havent been able to sit still for a while now
if it isnt my arm its my leg and sometimes both
bloody nightmare
take care , nite for now
keith
Hallo Anne,
Feeling sad, scared and angry is just about par for the course. Depending on the version you have,
you can tell people as the need arises i.e. a tremor version is difficult to supress.
There are so many new situations that arise, one does not know where to start.
I had a diagnosis of PD in 1994 and have been able to do most things I wanted to do meantime. In my case, there was no doubt about the diagnosis, I had a micrographic handwriting which responded to l-dopa.
If you have specific issues to address, please let me know.
Michael
I hope you are doing ok. My sister was diagnosed a month after you. She is doing ok, but the chronic fatigue bit brings her down. The hospital told her that the legs stimulate the brain, so she should keep walking as much as possible, which she does. She also managed to finish her one and only book and self-publish on Amazon kindle. I donlt know if she would have completed it if it wasnât for the thought that she might not do it after the diagnosis, soI am proud of her. I would be proud of her if she hadnât as well, because her worth, everyoneâs worth, is more than that, but itâs good to have accomplishments, bifg or small, for many reasons. This is her book: https://www.amazon.co.uk/Vampire-Resistance-Ruth-Lewarne-ebook/dp/B07JLG2TBY/ref=sr_1_1?s=books&ie=UTF8&qid=1547416898&sr=1-1&keywords=Vampire+of+the+resistance